Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • Hey They might be pumping it outta you and into me, what a great solution eh?

    I'm just hoping I end up with a matching pair, I've been padded all my days but I quite like the new improved model.....surgeon on 12th to see where we're going.  I've kinda ruled out nipple recon, it's another op that I'd need to go through think  I'm just going to keep my battle scar, one of my work mates told me "this is where you took on the evil, and kicked it's ***, wear it with pride beautiful girl", you've no idea how he made me feel, just when you think you look wrecked then someone says something like that to you, makes you feel on top of the world.  He seems to know just when I need to hear something nice (or find a mars bar hidden in my filing), guy is a gem.

    Anyway nothing is too crass to ask, nope it's not painful at all, it was a bit hard to start with, then got expanded every week for about 4 weeks, so again quite hard until you got used to it, i've now had this for almost a year and I'm quite used to it, like I said it's a bit harder than a normal one and I suppose it feels fake, but hey once it's tucked in a good push up bra (it doesn't move so it doesn't need the push) who knows, I honestly don't go around flashing my bangers, they get discussed plenty but not shown, it's quite strange how my people feel quite comfortable asking me questions (most of the blokes have wives and daughters) and I have no problem answering their questions, no one has ever been rude/crude or embarrassing about the whole thing.

    I was lucky to be bald through the summer so I could let the sun on my head, suntan lotion and under a shade most days though, and aye your skin does go dead soft eh?  my hair still feels really soft to, letting it grow for the next 6 months though, hopefully it will be waist long by then, thick shiney and flowing, like the pantene advert, well who wants to be a short grey haired bride?? You're sewing, I'm making wedding invites, how industrious we are.

    Re bra shopping, yip I'm central belt in Scotland, the middle sounds good to me, that's why we got trains. Where you from then?

    Speak soon

    S x

  • Welcome to the club Charles,

    I hope you're keeping well, there's lots of us around at most times of the day or night so feel free to pitch in at any time.

    Is your treatment finished now or are you still undergowing some?

    S x

  • Yes matching pair is good. Not worried about a lack of nipple but heard they can build a new one when they sort out Norah.  Am the type of girl who wouldn't do well with stick on nipples as I know however sticky that the blasted thing would work it's way loose and work it's way north. And I would be sat in a meeting with a lovely little adhesive sticking out  or on my chin..

    Ha ha great idea  however you would not have wanted the forget cancerous side and I would worry about the other side  so keep with your foot pump thing. 

    Yes had my chemo through spring and summer so was happily bald whilst we had the good weather. Found with the chemo my skin burnt if I stayed in the sun even if I slapped on screen so worked in my garden under a parasol or in the shade  but still ended up with a nut brown head .  Oncologist/consultant/ nurse. " have you been outside again.". Me, noooooooooo. Polishing nut brown skull   but I can't see it being shoulder length in six months it just seems to be thicker each day not much longer, long enough for me to put my fingers through and just about make it available for a trim. :). What do you plan to do for your wedding. Leave it or wig it or.........????? When is the wedding.?

    When do we get our first hair cut. Do I have a trim now or just let it grow wild and woolly for a while longer?

    Ok so it sounds as if you have a prothesis in... Didn't realise they were hard.  This week I am. Not enamoured with my muscle boob it's really tight and keeps swelling, on the side and i can feel it pulling through to my back and is very numb if I use my right arm too much. As they removed all my lymph nodes I have to watch out for lymphoma ?? Where are we mid nov, so another few weeks before I see my consultant   Must do some research on what I can do to reduce the swelling.  But am still not sure if I am normal recovery and how long I will be numb for.  This is the difficult period you don't want to keep harassing the Macmillan nurse who is busy with folk who really need her I asked my doctor how do I know if I'm recovering from surgery ok . He was a fat lot of good,  he said the consultant can't be worried about me if I don't see him until December  and recovery will happen eventually pah. So I'm not sure if achey stretchy annoying swelling is normal or not

    Am now  living in sunny Dorset... Sleep time now work tomorrow  

    Lovely"chatting" to you x

  • Hi Susan and thanks for the welcome

    Yes my treatment is over and I have had a couple of clear scans now - so very happy and count myself incredibly lucky to be here.

    I am under a monitoring routine now, have a colon scan planned for next month as is 18 months since primary removal - so while there is no symptoms of anything wrong it obviously plays on your mind given there was no symptoms before the cancer had previosly spread, but its not preoccupying me, simply a worry, no more than if you forgot to pay the gas bill!  maybe that will change as the date gets closer!

    I haven't read your story yet - I hope you are well too.

    Charles

  • Hello Bea28,

    On the important subject of hair style, hair loss and whether as you eloquently write to "leave it or wig it", we have created a discussion topic on this here.

    We entitled it To baldly go... aka Chemo the final frontier.

    And it's not just for girls so if  you, Susan or any of our blokes wants to share what your personal preference is, we'll be happy - and curious - to hear from you!

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hello everyone, just wanted to introduce myself, I am a new member , Angela.  Didn't know what to write as I'm new to this sort of thing.


    My husband was diagnosed with cancer of the oesophagus two months ago, and has just had his lat two tests, Pet Scan and Oesophagus Ultrasound.

    Consultation Thurs 24th, don't know what to expect. He is in constant pain and has lost two stones in weight.

    He has been ill for more than a year but the doctor kept insisting he had stomach ulcers. It wasn'y untill he insisted he see a specialist at the hospital, did she agree to do something about it and book him an endoscopy.

    John thinks it's too late for tretment to do any good, I keep trying to get him to think positive but to no avail. Don't know what to expect and am very worried for him.

    Any info would be much appreciated thanks.

    Message was edited by: merlin7

  • Hi,

    I'm not a "sticky" person either, sounds like too much faffing to me, I'm just gonna go with nothing, much simpler I think - for me anyway.  Pop them in a good bra and I'm good to go, easy peasy!!

    I love my garden to, and I stayed under a shade when I was out, didn't want to get burnt, I have a huge garden and the kids and their boyfriends used to come round and cut the grass for me it takes about an hour to cut), it's a bit wind blown a the moment but lovely in the spring when everything starts to bud, and I have an apple tree, which I get quite a crop off, and I usually end up making apple crumbles to see us through the winter - sound like a right Martha Stewart eh?

    You mean you've not had your first hair cut yet?  I always had short hair before chemo but it's back in and still as thick and quite long (ish), I popped into my hairdresser and asked her to tidy it up round my ears and neck, she did it in 5 mins (and didn't even charge - bless her), I've had a couple of nights out and treated myself to a wash and blow dry, and a run through of the straighteners, it looks ok actually, bit grey at the front but ok.

    I have a tissue expander in, it's firm but I'm used to it.  I got over the surgery realtively easy, done in Dec and back to work in March, I pictured the worst scaring I possibly could and when I saw my surgeons handywork I was delighted (you know what I mean), the man is a marvel, ok it's a scar but it's not bad at all.  Will find out next month though what next stage is and whether I can get evened up.  I'll keep you posted.

    I'm replying to emails just now as I'm out tonight - singing practise in time for Christmas....oh joy!!

    Back to work tomorrow.

    Hope you are doing ok, how are you finding being back to work?

    Keep in touch, I feel we've kinda hijacked this thread

    S x

  • Well that's good news that your treatment is finished and you're getting on with things, I think you have to push it to the back of your mind and not dwell on it.

    My story in a nutshell - diagnosed Nov last year with grade 3 breast cancer (a bolt out the blue as I've not been poorly at all), surgery in December, chemo next then radio therapy, all finished now and back to surgeon in dec to see if I can go ahead with finishing off the reconstruction.


    Apart from that I'm really well, I've been very lucky (if that's the right way to look at it), i get in there, get whatever treatment was needed and get out again.  At the moment most of my exercising is on hold as I'm nursing a spine fractured in 2 places - fell in may while doing the Race for Life, it's a bit uncomfortable but at least i know that that was the shadows that showed up on my scan.

    I hope you are keeping well, keep logging in and keep in touch


    S x

  • Hello merlin 7 and thanks for introducing yourself and sharing your story. You have definitely come to the right place to discuss your husband's treatment options and to talk to others for tips for example on what to expect from the next consultation.

    Feel free to start your own thread with your story, questions, fears and I am sure other people will come along and share their experience with you. It is normal to be worried in your situation especially as you haven't had the full results of the scans yet and so don't know precisely what you are dealing with.

    Keep us updated - we keep our fingers crossed for you that all goes well on the 24th.

    Lucie, Cancer Chat Moderator

  • Hi Angela,

    Welcome to the hippest place in town.  Can't offer you much in the way of advice but there's always someone who will come along and answer any questions you have, and there's always plenty of us here if you just want a friendly ear.

    Keep logging on


    S x