Hi Jensa and a warm welcome to our forum, 

This is indeed a rare cancer and not one I have come across often and I can imagine it must be hard for you to have to navigate it all alone. There is information on our website on vulval melanoma which I hope you will find useful and if you ever wanted to talk to our cancer nurses about it or ask them any questions, they have a helpline you can ring on this free number 0808 800 4040 it is open Monday to Friday from 9am to 5pm. 

I am sorry to hear that the treatment is giving you a lot of discomfort and that is preventing you from doing basic things. It might helpful to read our section on coping with vulval cancer and I would also get in touch with your medical team and explain that you are in a lot of pain and I am sure they will be able to give you some good suggestions so that you can feel better both mentally and physically and continue to work or carry out basic tasks. 

I hope that you will hear from the experiences of other members who have had vulval melanoma and I thought I would mention Suzibobs 's vulval melanoma diagnosis thread from last year which you are welcome to respond to or Kkr 's vulva melanoma thread. These are just a couple of examples and there are many more so I hope that you will get to connect with others here who are or have been in the same boat. 

Hopefully things will improve and I hope that you will manage to talk to a doctor about this pain and discomfort. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hi Jensa and a warm welcome to our forum, 

This is indeed a rare cancer and not one I have come across often and I can imagine it must be hard for you to have to navigate it all alone. There is information on our website on vulval melanoma which I hope you will find useful and if you ever wanted to talk to our cancer nurses about it or ask them any questions, they have a helpline you can ring on this free number 0808 800 4040 it is open Monday to Friday from 9am to 5pm. 

I am sorry to hear that the treatment is giving you a lot of discomfort and that is preventing you from doing basic things. It might helpful to read our section on coping with vulval cancer and I would also get in touch with your medical team and explain that you are in a lot of pain and I am sure they will be able to give you some good suggestions so that you can feel better both mentally and physically and continue to work or carry out basic tasks. 

I hope that you will hear from the experiences of other members who have had vulval melanoma and I thought I would mention Suzibobs 's vulval melanoma diagnosis thread from last year which you are welcome to respond to or Kkr 's vulva melanoma thread. These are just a couple of examples and there are many more so I hope that you will get to connect with others here who are or have been in the same boat. 

Hopefully things will improve and I hope that you will manage to talk to a doctor about this pain and discomfort. 

Best wishes, 

Lucie, Cancer Chat Moderator