Endometrial cancer and Ascites

Hello everyone 

I am 52 yrs old. I live with my 2 young children 12 and 8 yrs old and my partner.

I was first diagnosed with advanced ovarian cancer 5 months ago and have struggled with Ascites since the beginning. I've had chemo and debulking surgery  3 weeks ago. After the results of the biopsies, my diagnosis was changed to endometrial cancer. The chemo has helps with some cells and  markers were better but it never helped to reduce the Ascites. And now the Ascites is building up again. So because of the new diagnosis, the treatment will be changed to immunotherapy. I'm scared and lost. RoseH26

  • Hi HR14 and thank you for coming here and sharing your story, 

    How destabilizing it must have been for you to be diagnosed with advanced ovarian cancer and then have your diagnosis changed after the biopsy results to endometrial cancer. It's good that the chemotherapy helped in some way but I am so sorry you are having to deal with ascites and I can imagine this has been a real struggle. We have detailed information on our website on ascites which you might find useful as well as ascites resources and support and if you wanted to talk to our cancer nurses about your experience with ascites and get their insight, they have a free helpline you can call on 0808 800 4040 - it is open Monday to Friday from 9am to 5pm. 

    It's completely understandable that you are feeling scared and lost as you've been through a lot after the change in diagnosis - it's a lot to have to deal with and it can't be easy to have to adjust to the news of having your treatment changed suddenly. You might be interested to read our information on targeted and immunotherapy drugs for womb cancer. 

    I also wanted you to know that you are not alone here on the forum going through an endometrial cancer diagnosis and I hope that you will hear from others who are also about to start immunotherapy treatment or who have also had to suffer from ascites. I had a little look on the forum and have found for example that  posted this thread only a few weeks ago about being diagnosed with stage 3 endometrial cancer and was looking to talk to others with experience of this diagnosis so don't hesitate to drop a line on her thread if you wish to do so. If you type the word 'ascites' in our search function which is located at the top of the page, you will also be able to see other threads mentioning ascites. 

    I will now let others who have been through this themselves and had a similar diagnosis come and say hello and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator