IPMNs pancreas and Gall bladder Polyp

Hi everyone, hope you are all doing well. My name is Jo I’ve decided to join the group to speak to like minded people going through the same thing as myself. I’m absolutely besides myself struggling to cope, I was diagnosed with Multiple BD IPMNs in Dec 2025 and Also Gall Bladder Polyp only small 3mm. However since then there has been multiple cystic areas in liver, kidneys and thyroid, I am just beside myself as I’m on monitoring and they have from 3mm between December and May. Guidelines state that they should only grow 2.5mm per year. I don’t understand why mine have grown 3mm in 5 months but they still keep me on surveillance. Anyone else been in this situation? I am a nurse myself. And I have a back ground in clinical research. I therefore do a lot of reading around this. My eyes look yellow but when I go to A&e in constant pain I am sent home as my bilirubin is normal so staff say  not jaundiced. And sadly I’ve been treated like a hypochondriac with no help or emotional support and my life feels in tatters as im In constant pain and struggle to sleep. My left side is shaped like an egg, and the bloating is horrendous after food. Anyone else been through this ? 
Any advice is much appreciated 

  • My CA19 has gradually inclined from 27 December 31 Feb. 35 May, 42 June. Bilirubin has been up a couple of times during 8 months  but not much! It has been suggested maybe it will help if they take gall bladder out ‘incase’ sludge is causing the pain. But my pain and rumbling constantly is in my left side. He decided to go see someone private to see if I’m offered any more advice as I can not settle my gut is terribly bad about it all and im petrified of dying and leaving my kids and granddaughters. I am nearly 53. My life was great until this and I jst don’t think I can cope as no one so listening to me in a&e while I go on, one nurse told me they ‘can’t find notjing wrong with you I don’t m kw why you keep coming here ‘ my temp has been 41.7 thahs why I attended ! But my bloods were normal. Only tings out of range is ca19 and my B12 over 2000 for about 7 months and is coming down now it’s around 1000. Ca19 is still inclining though and pain is almost constant now