A BIT of a whirlwind! Found out a month ago that I had colon cancer following a FIT test and colonoscopy

Found out a month a go that I had colon cancer following a FIT test and colonoscopy. I went along for the colonoscopy fully expecting nothing to be wrong only to be told I had a 6cm tumour. I can honestly say that my mind never had a moments peace from that point on. Even though I tried to keep myself busy, cancer and operations were never out of my mind. I developed an anxious cough the day after the diagnosis and that has only just stopped. I struggled to sleep and so went to bed later each night but woke at 4am on the dot, with cancer as my first thought, no matter what time I went to sleep. 

There followed a range of tests, the results of which seemed to suggest that the cancer had spread, which then led to further tests. These thank goodness proved that it hadn't spread to liver or lungs. My surgery was scheduled quickly (which I'm grateful for because by this point my anxiety was at epic levels). 

Having convinced myself that I was going to die on the table I did the usual things - wrote a will, spoke to solicitors, left lists telling my family how to use the oven etc, some really crazy stuff.

I had my op a week ago today and writing this I'm sitting at home in a place I was convinced I would never see again. Whilst in hospital I realised that I was far from the only person who had had these exact same feelings of anxiety and especially the crippling impossibility of getting the situation out of your mind for longer than a few minutes. I just wish I had known this when I was experiencing it!

Now I just have the wait for pathology of the tumour and the possibility of further treatment. Then I can deal with the heart murmur they found in the hospital - it never ends.

  • Hello Juju66, 

    I can imagine it was a bit of a shock for you to find out you had colon cancer after having a FIT test and a colonoscopy. It's completely understandable that you felt caught a bit in a whirlwind from then on. I am glad the anxious cough has gone away though - that must have been really unpleasant for you. What a stressful time it has been for you having to go through all these tests to find out whether the cancer had spread. I am glad though that it hasn't spread to the lungs or liver and that your surgery was scheduled very quickly. 

    I hope that you are recovering well from the operation. It must be nice to be back in the comfort of your home and it was normal to have those feelings of dread before the operation, the often irrational fear that something will go wrong. All the long waits for results you are having to experience at the moment add to your anxiety levels and I hope that you won't have to wait too long for clarity and that you find out exactly what the pathology of the tumour is and what your treatment options are. I am sorry they also found a heart murmur at the hospital and I can imagine this feels never ending but hopefully once you have all the information and know exactly what you are dealing with, you will be in a better place but if you feel that this anxiety is not going away and is all consuming, make sure you talk to your GP about it. 

    It's not easy to have to deal with the news of a cancer diagnosis when you were not expecting it and then to have to wait again to get all the details regarding the diagnosis and treatment plan and I thought I would share with you our helpful tips to help you cope while waiting for important news

    We have in-depth information on our website on bowel cancer which I hope you will find useful and if you wanted to ask any question or simply talk things through with one of our cancer nurses, feel free to get in touch with them on our free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    You are not alone here and I hope that you will hear from other members of our community who have had a colon cancer diagnosis and who will be happy to share their experience with you. 

    Best wishes and best of luck for the next treatment steps, 

    Lucie, Cancer Chat Moderator