Stage 4 endometrial neuroendocrine cancer

Hi, diagnosed in January at stage 4 first 3 rounds of chemo went well with first scan “ excellent result “ reported however, finished final 3 rounds and my latest scans have shown it has come back in my womb, abdominal and obviously lymph nodes, absolutely devastated and scared.

has anyone in similar position had folfiri or currently having this chemo as this has been offered to me 

  • Hi Dawnn, 

    A very warm welcome to Cancer Chat and I am so sorry to hear about your stage 4 endometrial neuroendocrine cancer diagnosis and that the latest scans have shown that it has come back in those areas. It is normal to be devastated and scared and I hope that you will hear from other members of our community who have been in a similar position and who have had Folfiri. Although everyone reacts differently to treatment, it is often helpful to hear from others who have had Folfiri and to hear about how they themselves reacted to this drug. 

    I also wanted to share with you the information we have on our website on Folfiri and if you have any questions don't hesitate also to get in touch with our cancer nurses on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    Best of luck for your treatment if you decide to go ahead with Folfiri, 

    Lucie, Cancer Chat Moderator