Hi
I'm 59 yes young and had a diagnosis of LS roughly 10yrs ago after a colposcopy for something else. I was told I had it but then kept bad left in the dark. I never got regular flares or discomfort but I did end up with lots of fusing. I have battled with under active thyroid since my 20s and hassimoto auto immune. Part of me thinks this is linked with LS and auto immune and been unlucky.anyone else have auto immune conditions? . Anyway I had vin 3 surgery 3 years ago. And today in another area had wide local incision got invasive vulva cancer . Poss 1b. MRI showed no spread.
It is such a taboo subject due to the location and that is the part I struggle with. And only confided in a select few. I hope in years to come it is spoken of more freely especially to educate others. I wish the very best to you all in your journeys . X
