Hi,

I was diagnosed 6 months ago, at the age of 48 with Chronic Neutrophilic Leukaemia. It is exceptionally rare and as a result, there is very little information available. My treating Haematologist has only ever known of one other case. Information on treatment options is scarce - the rarity of the condition means there is little data available. I am currently being treated with Jakavi and find it difficult to tolerate. This is to treat the symptoms, rather than the cancer itself. Has anyone else had this diagnosis?