Hi I have just had laser treatment and am waiting to see if I need chemo. All very sudden and moved very quickly which is good although the speed and as I really never expected this mentally it’s hard. They also said it is very likely that it may come back as it’s a characteristic of this type of cancer! What happened with you?
Thank you that’s super helpful. I don’t know anyone else who has had this so it’s reassuring to hear. Just waiting for pathology and go from there, they think it’s low grade but I don’t want to depend on that until I know. I suppose I was just thinking if low grade you have a better chance of it never coming back which may not be the case. I haven’t reached out to my clinical nurse as couldn’t gave it but maybe it’s a good idea. If it’s low grade they seemed to think I wouldn’t have chemo but to be honest I would rather have it as a safe guard, so you think it’s something you can ask for even just to help mentally?
What you should ask is whether they administered Mitomycin at the time the tumour was removed.
Some hospitals do this routinely, while others do not, often depending on their clinical approach or experience.
You are always entitled to ask about treatment options, and they should explain their reasoning if they decide not to offer a particular treatment.
If the cancer is low grade, they may choose active surveillance instead of immediate treatment.
For example, I have cystoscopies once a year now, but initially the checks were more frequent at 3, 6, and 9 months and then moved to annual monitoring once everything was clear.
It is also important to remember that not every growth in the bladder is cancerous. There is a common misconception that all bladder growths are cancer, which is not strictly accurate. In my case, I have had two growths classified as UPUMP (Urothelial Proliferation of Uncertain Malignant Potential).
This essentially means they are potentially precancerous and could develop into cancer if left untreated.
Yes that was the same as mine, mine came back as a grade 2 cancer, but all the reoccurrences have been grade 1, I have had a course of Mitomycin and the BCG. So when do you go back for your results, or have you already received them?
Yes , they will have a treatment plan in place, write down all the questions you want to ask, as if you try to remember them, you will forget, and bring someone with you if you can.
