MDS

Have MDS 5q-. Diagnosed January 2000. Frequent blood transfusion now 2 units every 3 weeks. Noticing more joint pain and aches in my body in the past 6 months. Not sure if age related as now in my sixties or part of the mds. My sleep pattern is atrocious as the pain keeps me awake even after taking pain killers. Does anyone else suffer with this if so any remedies to suggest? Finding it hard to function in every day life as frequently tired/exhausted. Any help much appreciated