Just diagnosed breast cancer

Hi, I'm Maz 

Last week I was advised that I have breast cancer and I have been reading everything I can find about it.  I have a appointment on Wednesday to find out more about it and what they consider to be the best plan for me.  In the meantime I have been trying to decide what plan I want, which is pretty stupid when I don't yet know the options.

It would be so good to hear how other people have coped.

Thanks Maz

  • Hi Maz,

    A very warm welcome to our forum.

    I am sorry to hear that you have been diagnosed with breast cancer and know the anxiety that this brings. Until you have all of your results, it is impossible to know what to read, as there are many different, types and stages of this disease. Some of these types are more aggressive than others and need different sorts of treatment.

    Did you have any tests carried out when you attended the clinic? When these come back to the clinic, the findings are discussed at a multidisciplinary team (MDT) meeting. This is a meeting between your consultant and all of the other medical professionals who are likely to be involved in your care. Here they will have discussed the type and stage of your cancer and the best treatment for you. Your consultant will put any options to you at your next visit.

    In the meantime, try to avoid consulting "Dr Google", as much of the information is poorly researched, out of date and aimed at the more spectacular cases. This won't give you any answers and will only serve to scare you further. You are always better to stick to the more respected sites, such as this.

    How have you been coping? It is a lot to take in and can take some time for it to assimilate. I was first diagnosed 17 years ago and had a lumpectomy. Six months later I was diagnosed with pre-cancer in the other breast and, within a year, I discovered another primary in the original breast. I had a double mastectomy for this bout. My surgeries were followed up by 6½ years of hormone therapy. I am fortunate in that I still lead a busy and fulfilling life.

    I didn't cope well with my initial diagnosis. I had lost my mum to secondary breast cancer, which had spread to her brain, bone, liver and lungs and I expected to suffer the same fate. My emotions were all over the place. However, once I discussed my results and treatment options with my consultant, I began to settle down - this seems to be a common denominator with most of us!

    I am glad that you don't have much longer to wait until your appointment on Wednesday and I hope that it all goes well. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    Thank you for responding to me, I now have more information and it's not quite as bad as I thought it might be. The cancer is stage 1 and I won't be having chemo so could have been a lot worse, I still have a under arm lymph node to be checked out though.  It must have been so awful for you after what your mother went through I am so pleased you now have a fulfilling life.

    Now decision time, I had decided on mastectomy but seriously having second thoughts. I am due to be tested for surgery as I have COPD which may cause a complication.  I don't cope well with having anaesthesia and am prone to panic attacks just the thought of it makes me very anxious so if there is another way I will take it.

    I am 78 and have multiple sclerosis, I had anal cancer T3 12 years ago and was successfully treated with Chemo and Radiotherapy.  On Wednesday my consultant spoke of some tablets called Tamoxifen (Endocrine therapy) which can keep the cancer from spreading, so maybe I can just keep taking these?  I understand that the side effects of these can be quite nasty?

    I will let you know how I get on, thanks for being there for me.

    Maz xx

  • Hi Maz,

    I am glad to hear that your cancer is still stage 1 and that you won't need chemo. I am also sorry to hear that you have already had a bout of anal cancer, but happy to hear that you are a survivor of 12 years. It must have come as a dreadful shock to discover that you have a second cancer after all of this time - I know how dejected I felt when my second bout was diagnosed, just a year after my original diagnosis!

     Oestrogen is a hormone that plays a key role in the development and regulation of the female reproductive system and secondary sexual characteristics and cancer thrives on it. This is why your consultant has suggested taking Tamoxifen. I took this for the first year, but had to change to Letrozole after I discovered the second bout. It does have some unpleasant side-effects, but not everyone gets these. Even if they do get them, they vary in severity from one person to another. I took hormone therapy for 6½ years and I attribute the fact that I have been cancer free for so many years, to these 2 hormones. I didn't have chemo or radiotherapy, so this is all that I can attribute my life to!

    I appreciate the potential problems with anaesthetic, when you have COPD and hope that  the operation can still go ahead. I always have problems with anaesthetics, as I stopped breathing on the operating table when I was having another operation. We discovered that this was because I have a very narrow oesophagus and I now have to have fibre-optic intubation and to stay awake until the camera is inserted before they can knock me out. It's always a bit of a lottery as to whether or not I'll pull through, but so far, I've been very fortunate.

    It doesn't sound as if you've been the luckiest of people with your MS on top of the other conditions. I am the same age as you and I expect that this is one of the drawbacks of aging - I have a number of other medical problems too. Unfortunately, we only get one chance at life, so we've just got to make the best of the hand that we've been dealt!

    Was there any particular reason that you opted for a mastectomy instead of a lumpectomy? What did your consultant recommend? They usually say that a mastectomy doesn't improve your chances any more than a lumpectomy does. This has to be your decision and it's a hard one to make. Don't be afraid to discuss your options further with your consultant - you still have time to change your mind.

    I look forward to seeing your updates and I am always here for you.

    Kind regards,

    Jolamine xx