Call the helpline on 0800 800 0404 

Cheers thank you. 

Keep us posted

Hi Angie,

A very warm welcome to the forum.

I am sorry to hear about your diagnosis. Do you know what other tests you've had and are there any that you still need to get? This will determine how quickly they come back, as some tests take longer than others and times can also vary from one clinic to another.

Waiting for results is always an anxious time. The best advice is to keep yourself busy, whether with work or pleasure - anything to take your mind off the wait. You are also best to stay away from Google and stick to the more respected cancer sites. This is because much of the information there is poorly researched, out of date and it aims at the more spectacular cases, which will only serve to scare you further. You will also find it helpful to write down any questions you may have and take this with you to your next appointment, as your consultant will be in the best position to give you the advice you need. No two cancer cases are the same.  Each cancer case depends on the type of cancer, the stage of the disease, the grade of the disease and the patient's individual medical health. Your consultant is the one person who will have all of this information to hand.

I am a breast cancer survivor of 16 years, but you have come to the right place for support, help and advice. Hopefully, someone who has more experience of nasal cancer will come along soon to chat to you. Please remember that no question is too insignificant to ask - if it worries you, it is a valid one!

Please keep in touch and I hope that you hear something soon. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine 

Sorry to here you had to go through breast cancer but great to here you are a survivor. That is such a wonderful thing. Thank you for your lovely reply. I was actually on Google and did get a big fright seeing a woman that had lost all her nose. Good advice. 

My consultant phoned me and said my biopsy had come back positive for cancer and was going through further test to find more about the cancer. He mentioned that he would send me for further staging scans. I think that's the terminology he used and that because more people would be involved now they would have a multi disaplinary meeting. 

I had previously gone in to get a very large unilateral polyp removed but was told that they might not do the operation as my scans were showing things they went not too sure about and they might only take a biopsy.

I have been quite shocked how quickly the bulge in my nose as grown in just 2 weeks.  Did you notice any size changes in your tumor. 

Kind regards 

Angie

Hi Angie,

Don't worry about the MDT (multi disciplinary team) meeting. These are routine meetings. The MDT meeting is held regularly and is a place for all of the medical professionals who will be involved in your care, to discuss the findings of the biopsy and any other tests, They then decide on the best way forward for each patient, before you see the consultant to discuss your results. These meetings are mostly held on a weekly basis. I don't know how long it takes for these to come back, when referring to the nose, but most seem to be back within 1-2 weeks of having the tests. It is always helpful to ask when you can expect results to be back from any tests at the time of having the tests carried out.

It must have been quite a shock to find the tumour in your nose growing so quickly, so it is just as well that it is being attended to quickly. All three of my lumps were small and didn't change much in size before my operations. Strangely, the largest one was the one that was pre-cancerous!

Kind regards,

Jolamine xx

Hi Jolamine 

Thank you for making things clearer. That make me happier to know things and I will just wait and see what happens. It shouldn't be too long. 

Kind regards 

Angie xx

Hi Angie,

I am so sorry to hear that you may have to lose your nose. I felt the same when, after my second cancer, I was informed that I'd need a double mastectomy, but was an unsuitable candidate for reconstruction, due to scarring from previous non-cancer-related surgeries. I expect that if my tumour had been on my face, I would have felt even worse about it. In the event I have coped reasonably well in the past 16 years, to the extent that I now often find myself going completely flat for comfort.

Have you asked whether you can be put in contact with someone who has already undergone the surgery that you're facing? It is really helpful to have someone who can give you the benefit of their experience. My type of cancer was very rare and they couldn't find anyone for me, but I would dearly have loved to benefit from someone's advice and experience prior to my surgery. I hope that your care team can come up with an acceptable plan on Monday and that things will become a little more straightforward from  there on in. Do please keep in touch and let us know how you get on. Don't forget that we are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine

Thank you for your kind reply. It must have been really hard for you as breast are a major part of a woman's identity and when I have seen pictures after operation without reconstruction I wondered how it was possible for someone  to cope and live with the change. I always said to myself "I would not be able to cope". but you have had to and found a way. Which is great.  

I will find out on Monday or Tuesday the plan and then my journey will begin. I have read a couple of articles and it's a long journey waiting for healing and then adding magnets for attaching my new nose. 

I am going to eat well and do some light exercising in the meantime. Once again thank you for your lovely reply.

Kind regards

Angie