Waiting for cancer operation to remove parotoid gland - has anyone had the same?

Hello everyone 

I have been diagnosed with stage 2 cancer in my parotoid gland which means they will have to remove my facial nerves which will leave me with facial paralysis so am really worried about outcome of this surgery, has anyone out there experienced same ?

  • Hi Jacied

    I had a parotid gland, some minor salivary glands and lymphs in my neck removed about 11 years ago, followed by radiotherapy to the area. The cancer was squamous cell  carcinoma.

    The surgeons team will take great care to preserve your facial nerve, by locating the nerve and its branches, hours are spent doing this and it will be left largely intact if the cancer is not too advanced. In my case I did have temporary partial paralysis of my face on one side. I had a numb face, a drooping lip could not smile or open my mouth fully or speak properly. Post operation I saw a speech therapist who showed me mouth, throat and jaw excercises to do 10x each day. Which I followed meticulously. It took around 6 months to be fully recovered and I have had no problems since. Another complication is dry mouth from lack of saliva, buy a water bottle and carry it around with you along with a small spray bottle filled with water to freshen your mouth. I added a single drop of pure orange oil to the spray water. You can buy it in the cake baking sections of supermarkets. It is expensive but the tiny bottle will last a long time as it is so concentrated. I wish you a successful operation and cancer free future.

    Ed

  • Thank you so much Ed for your reply it has helped me more than you know to accept things will improve. Can i ask you - Can you smile now? As my greatest asset is my smile 

  • Hi Jacied

    You will be pleased to know I can smile perfectly and drink and eat properly.

    You may not get anything more than a temporary numb face from bruising. It is a last resort that they will remove any of your facial nerve. I had a radical neck dissection to remove the parotid lymph nodes and other salivary glands. The cut was along a natural crease in my neck and is invisible now.  You will be fine, so don't worry. (Easier said than done)

    Ed

  • Thank you Ed did reply once but dont know if it went so making sure this goes to Thank you again for your support , its made a world of difference to my thinking and knowing theres light at the end of the tunnel. Thank God for people like you x