Myeloma questions - driving and prognosis

Hi all, I’m going through tests for myeloma. Will I be able to drive if I am at stage one. And what kind of time span can I expect to live?

  • Hi Dexter, 

    I think that driving will depend on the side effects of your particular drug regime . Perhaps ask your nurse specialist. I know of some people who drive themselves to treatment. I never do, I rely on lifts. Sometimes I walk home if the weather is nice. 

    I personally didn’t drive for seven months following diagnosis. Initially I was in a back brace as I had ‘bony destruction’ throughout my spine. This overlapped with starting chemo. 
    I lost my confidence and went out on quiet roads with my husband at first. 

    Nobody can predict how long. I was diagnosed almost 14 years ago . Doctors talk about median survival, but as individuals we all respond differently to treatment 

  • Hi April, thanks for your message. It’s a worrying time as I’m in the investigation phase but I’m being told that I have Myleoma. Apart from the fatigue and slight exhaustion, I’m not feeling too bad. It’s the waiting that’s the hardest part. I’m pretty sure that I will receive chemotherapy but if that extends my life then I’m happy. I’m seventy years old and quite active so I’m keeping my fingers crossed.

    Best wishes for the future.

    Decter

  • Hi again April, if you don’t mind me asking, what age are you and what stage is your Myleoma? Did you ever smoke? Are you having any kidneys problems? How long before you accepted your condition?

    I’m sorry for all the questions but I’m very anxious and need any encouragement that you can give. 

    Regards

    Dexter

  • Hi Dexter, I understand your anxiety. It’s difficult in the beginning, when you’re in the middle of tests and don’t have a definite plan. The brain doesn’t like uncertainty. Hopefully you will feel more settled once you know exactly what the doctors have decided

    I was 52 when I was diagnosed, I am now 66

    I was diagnosed stage one in 2012 and haven’t received any further updates.

    Kidney function ok. 

    Took years to accept, couldn’t even say ‘multiple myeloma’ 

    I definitely have not accepted that since I relapsed three years ago I am on treatment until I drop cork leg

  • Hi April, what exactly happens when you relapse? Can’t you go back into remission any more? What do you mean when drop cork leg?