Hi - I'm new to the group. I've been coping as well as I can but struggling at the moment.
I was diagnosed with oesophageal cancer March 2025. I received chemo, then had surgery to remove the tumor. They performed an Ivor Lewis procedure which went wrong (leaked). I was rushed to theatre after a few days where they had to remove the whole oesophagus. I had more chemo, then just as we were discussing reconstructive surgery (using the colon this time), they discovered my cancer had returned, metastisized to my liver. I'm now not suitable for the reconstructive surgery. So my life now is one where I cannot eat food or drink liquids. I wear a stoma bag on my neck to catch my saliva which exits through a hole in my neck. All food and liquids are through a peg and directly into my stomach.
I've been using my peg since July 2025 and now with no prospect of eating or drinking again, I'm finding this on top of my cancer treatment a double whammy - its difficult to stay positive especially as I'm still going through my new chemo sessions so don't know the longer term outlook. I have one more chemo before the first CT scan since cancer returned.
Is anyone else living like this? how are you coping?
Wishing any of you on the cancer journey the best of luck, my thoughts are with your all.
