Diagnosed in 2024, went into hospital with a swollen leg, also a palm size lump. They thought it was a blood clot? They took my bloods, and I was called into a room in the Intensive Care Unit after 11 hours waiting, and told by a lady in white tunic, that it looks like you may have Leukemia?  She then said " It's okay some people can live a long time with Leukemia." (I couldn't believe how she told me It was like living a Nightmare!)

I left the hospital 11pm, drove home in shock. 

I then found out that lady in ICU should not have told me, and should have referred me on to Cancer Haematology for tests. I then waited for 8 weeks for appointment after more bloods were taken, but NHS sent the wrong bloods off. Waited after more bloods taken for the next diagnosis day (Which was 11 weeks 2 days of waiting for diagnoses.) 

I am on Watch and Wait (Which is every 6 months now, my next blood test is September 2026.) I do feel like I have been left on the shelf with CLL, as there is no cure. But I believe you can have tablets to try to control the white blood cells when it is necessary/When ever that is? 

Would love to hear from anyone else with CLL/Blood Cancer?