Hi AnneMichelle, 

A very warm welcome to our forum and thank you for sharing your story of your pseudomyxoma peritonei diagnosis - it is indeed a very rare cancer and I hope you are ok. Poor you having debulking surgery on Christmas eve. What a strange Christmas it must have been for you! As you say very eloquently, it's not a path you would have chosen and you seem to be doing amazingly despite the setbacks like finding out that your PMP is high grade 

What an anxious time it must be for you as you have to wait 3 months for your CT scan to find out whether you will be having a second surgery. I just wanted you to know that the forum is always here for you anytime you just feel the need to write things down and offload a little.

If you wanted to talk things through with someone, our nurse helpline is open 9am to 5pm Monday to Friday on this free number 0808 800 4040 so don't hesitate to give them a call at any point. 

It might give you a little comfort also to know that there are other members of our community who have had a very similar diagnosis and experience - I thought I would mention for example this thread - looking for others with PMP which you are welcome to respond to -  only if you feel like doing so. 

You are totally right though in your approach to try and take one day at a time and to keep well away from Google as it will only make you feel more worried without giving you any useful answers. Sometimes hearing from others who have shared experienced of PMP can help and I will let others who have been in a similar place come and say hello! 

Best wishes and best of luck for your future treatment - I hope you find out all the details soon of what your options will be in the coming weeks and months. 

Lucie, Cancer Chat Moderator