Hi. I was diagnosed with Angioimmunoblastic T-cell Lymphoma in September 2025, starting with lumps suddenly all over my skin first appearing in June 2025. Diagnosed at Stage 4 with this relatively rare blood cancer with around only 140 cases in the UK each year
I completed six chemo cycles in February 2026 and now await PET-CT scan at the end of March.
Have visited a few online forums and there is very little mention of AITL and any posts are from years back. Is anyone out there with experience of this? It seems a lonely place!
