Hello Stukie,

I hadn't heard of mantle cell lymphoma either until July 2025.  I had been getting terrible night sweats for years and then swelling around the groin and legs which got so bad I couldn't lie flat without discomfort.  I should have gone to my GP sooner but she got me into hospital immediately.  After a couple of weeks I was transferred to a bigger hospital and the hematology section where, after scans and a biopsy, they nailed it.  It is a real shock when they tell you but they told me it is treatable and after the first few months of chemotherapy I felt OK.  I had a bad reaction to the first round of chemo but after 6 months I am now on 2 monthly treatments as an out patient for the next two years although the five hourly sessions are a bit much and I feel wiped out as well for a couple of weeks after and feel the cold something terrible.  The best thing is to keep busy and carry on as normally as you can.