I'm sorry to hear that a loved one is living with myelofibrosis. It's never easy seeing a loved one struggle with a health issue, and I hope that you're both being well supported by the health professionals involved in their care.
We have quite a few posts where people have talked about their own diagnosis of myelofibrosis (which you can find using the search function at the top of this page), but I can't see any recent posts where people have shared their experiences of a loved one with the same. You might like to have a look at the MPN Voice website as well.
If you think it may help to talk through any concerns or questions you have with one of our nurses, you're welcome to call them on 0808 800 4040, Monday to Friday, 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can.
I do hope you can connect with others who are impacted by this diagnosis soon.
