I was diagnosed with stage 3/4 ovarian cancer January 2025. I’ve completed 6 rounds of Paclitaxel and Carboplatin (21 day cycle) had debulk op end of July and now on secondary chemo 3wks on 1wk off Paclitaxel only until April. They told me the CT scan post op shows nodules along the scar line. My ca125 wasn’t particularly high to begin with at 79 but after the op dropped to 12 then began creeping back up to 44. Also, I have a permanent chest drain in my left lung now due to the fluid build up caused by the cancer cells.
I’m feeling disappointed I was not offered a drug called Avastin to control the fluid to begin with. I’ve been told now I’m on secondary palliative treatment I’m not eligible for this under the NICE guidelines.
I also feel disempowered as I’d much rather have had a PET scan after the CT scan to confirm it’s cancer and not scar tissue. CT scans are not as accurate.
I would be interested to hear if anyone else here would like to share their experience of ovarian cancer. Has anyone been accepted the drug Avastin?
My oncologist told me I can go private for this drug but it’s expensive. I can not afford to go private. I’m toying with the idea of using unconventional cheap drugs like benzo and methotrexate as they have shown to kill cancer cells in animal trials.
