Neuroendocrine Cancer ( NETS)

Hi - I am  about to have my 3rd Colonoscopy and 2nd Endoscopy — all within a 2-month period and it’s been exhausting 

I was originally advised  it’s in the right ( large) colon - then last night as my Consultant was arranging the next procedure - he said it was in the stomach as a it was in a small polyp he had removed ( which I was originally told was normal)

He said after he has performed the next Colonoscopy (3rd) and Endoscopy ( 2nd) - then I might just need to”a small amount of chemo or radiotherapy 

I truly feel like this is so confusing and the waiting is just mind-blowing

has anybody else had something similar and am I the only one feeling like I don’t really know what  is going to happen 

My Consultant originally said Grade 1 - I thought this was the one where they just watch and see’ - but now this cancer feels very real with mention of chemo/radiotherapy

i’m not sure how to deal with all this information 

  • Hi Lin2044 and welcome to the Cancer Chat community.

    I'm sorry about the influx of information you've been given and for how confusing everything is at the moment.

    This must be very stressful and as you've alluded to in your post, it can be a lot to process so if it would help to talk things through with someone, do give our cancer nurses a call. They're available Monday - Friday (except tomorrow as it's New Year's Day) between 9a.m - 5p.m on 0808 800 4040. With their insight and knowledge they will do all they can to work through this with you and make it easier to understand, and hopefully less scary too.

    Hopefully some of our members will be along soon to share their experiences and advice but in the meantime you can find out more about neuroendocrine tumours (NETs) on our website.

    I hope this helps and all goes well with your next colonoscopy and endoscopy.

    Kind regards,

    Steph, Cancer Chat Moderator