PMP - was diagnosed in 2022 and yet to find someone who has had the same surgery as me. Would love to hear from others with PMP

HI

I was diagnosed with Pseudomyxoma Peritonie in 2022 and under went the MOAS. 

i had a number of organs removed, and was left with a stoma and 1/2 stomach. I also have stage 3 kidney disease. 

i have yet to find anyone who has had the same surgery. 

If you have been diagnosed with PMP, or know anyone who has, I would love to hear, as I am still learning and still have many questions, even after 3.5 years. 

Thank you 

  • Hello Si59 and welcome to Cancer Chat.

    I'm sorry to hear you were diagnosed with pseudomyxoma peritonei 3 years ago and about the life changing operation you had. This must have been a very challenging time.

    I've had a quick look through the forum and found some discussions you may want to have a look at. A member called Mrxutu posted about their PMP diagnosis 3 months ago and although this discussion by 9054Hall was created a year ago, you will see that they had quite a few responses from other members living with PMP, so you may want to try reaching out to them as well.

    If you'd like to discuss any questions you have about your diagnosis with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help. You may also be able to get further support and advice from the pseudomyxoma survivor website.

    I hope this helps and are able to connect with others who are living with PMP soon.

    Kind regards,

    Steph, Cancer Chat Moderator