Apologies - I was diagnosed in 2023 - not 2003! 

Hi there and sorry to hear this, I’m wondering if you have a uti, have you been in touch with your cancer nurse if not I think I would also ask your doctor if you can do a water sample. I’ve had bladder cancer high grade and did 15 BCG before there was a world shortage. ( it does play your bladder up though) I’m happy to say I was discharged last year after 14 years. Hopefully the same for you. I’m only on here now as I have a colonoscopy tomorrow and as you know you try and find everything about it, hence I came across your post. Good luck x

Thanks. Did check for a UTI but urine test showed no infection.

Have a cystoscopy (camera check) in two weeks. Maybe this will offer some explanation.

Hi I'm new to this chat. I have had 2 turbt and am now having laser treatment. I was diagnosed last year.What determines the type of treatment you have as I am getting very tired. I recover within 3 months and return every 3 months for another laser session.