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Undergoing investigation for suspected ovarian cancer

Peanut246
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Hi,

I am new to the forum. I am 51 with a 12yo son, a lovely partner and also a beautiful labrador that won't leave my side as he knows Mum is poorly.

I have had blood tests/ ultrasound  for suspected ovarian cancer. I see a specialist next week for diagnosis. My symptoms are many but the worst is currently fluid retention in my abdomen. I'm booked in to have it drained in a few days, this cannot come soon enough. I have been referred for a CT scan too as the ultrasound wasn't clear due to the fluid build up. The scan did show a mass that needs addressing.

My head is spiralling and the unknown future is terrifying. I'm reaching out to see if anybody has any wise words for this limbo time I find myself in?

I feel like I have a huge ticking bomb inside me.

thanks

  • Offline in reply to Mary.

    Thank you Mary.

    I had the hysteroscopy. It was bearable with entonox and pre-emptive painkillers.

    I go back tomorrow to see the specialist after their MDT review. The nurses have already told me some of the biopsy results and confirmed that High Grade Serous Ovarian Cancer is present. So what I thought has now been confirmed. The last biopsy is to check for any secondary endometrial cancer too.

    Tomorrow I should know the stage and hopefully when the treatment can begin.

    Later in the week I am going to be assessed for paracentesis(drainage) again as the fluid seems to be returning. If they see enough I will get that done too.

    My appetite is extremely poor but I make myself eat every day regularly. I've started carrying glucose tablets in my pocket when I go out just in case I need a quick boost. My BP sometimes goes a bit low because of everything going on, the nurse has advised on how to manage that.

    Mental health wise, it is so hard to feel like I'm not living with a death sentence hanging over me. I'm sure I will feel better when treatment starts. Statistical odds do not look good for HGSOC but I have to believe in my case being individual and fighting with all I have.

    Until next time.. x

  • Offline in reply to Peanut246

    You are going through an awful lot to cope with. Although it is hard for them too, it is good that you have family to support you. What did the specialist say?

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