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Undergoing investigation for suspected ovarian cancer

Peanut246
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Hi,

I am new to the forum. I am 51 with a 12yo son, a lovely partner and also a beautiful labrador that won't leave my side as he knows Mum is poorly.

I have had blood tests/ ultrasound  for suspected ovarian cancer. I see a specialist next week for diagnosis. My symptoms are many but the worst is currently fluid retention in my abdomen. I'm booked in to have it drained in a few days, this cannot come soon enough. I have been referred for a CT scan too as the ultrasound wasn't clear due to the fluid build up. The scan did show a mass that needs addressing.

My head is spiralling and the unknown future is terrifying. I'm reaching out to see if anybody has any wise words for this limbo time I find myself in?

I feel like I have a huge ticking bomb inside me.

thanks

  • Offline in reply to Peanut246

    Morning.

    Things have progressed again. Yesterday I had day surgery for paracentesis. This was the most physically painful thing I have experienced since childbirth! I just was not prepared for how intense it was going to be...emotionally too. They drained over 3 litres off and after the drain was removed I did feel a sense of relief.

    The clinic have cancelled the MRI as they saw what they needed to on the CT scan from Sunday. I will find out more tomorrow when I go to see the specialist. I have been told by the nurse to expect an endometrial biopsy procedure at the appointment. 

    I have been told a request has been made for a biopsy by radiology too...more day surgery ahead.

    My son is still feeling poorly and he is a generally strong and healthy lad...I believe he is absorbing the stress of the situation no matter how carefully we handle it. He's off school today as I decided to let him have a day curled up on sofa and have some 'Mumming' to let him know I'm still holding him safe. He's just had a boiled egg and toasty soldiers like when he was younger. I think he needs this care.

    My partner is being amazingly supportive both practically and emotionally but feelings are running high for us all right now.

    That's it for today, let's see what happens next!x

  • Online in reply to Peanut246

    I don;t have any wise words to offer I'm afraid. However, what I can say is that I know, from experience, that it does help to post on here. People read and send support. I feel for you, your son and your partner and wish you good luck for tomorrow.

    One day at a time.

  • Offline in reply to Mary.

    Thank you for your kind words Mary. 

    I am finding the forum a useful outlet for sure.

    Since I last posted I have had numerous calls from the hospital saying things have changed for tomorrow. I am getting used to this 'one day at a time' mentality now.

    I am still waiting for the definite plan to he confirmed! Que sera sera! X

  • Offline in reply to Peanut246

    Morning Mary,

    Yes, well things keep evolving as I said... Ì'm due back into day surgery this afternoon to have a biopsy of the abnormalities seen on the scans. So I'm back into theatre for another needle in my tummy. It's the same team that drained me on Monday!

    Then later I am going to meet one of the specialist gynae consultants for the endometrial biopsy. So a busy afternoon ahead but hopefully they will then have all the info they need to make a diagnosis and treatment plan sooner rather than later.

    I am dreading the ascites building back up...after being drained I was 6lbs lighter! I'm much more comfortable not being overloaded with the fluid as well as everything else going on in the background.

    I still have very little appetite but I'm making myself eat protein rich meals little and often whilst drinking lots of water to stay hydrated. It's been difficult with all the bloating from the ascites.

    My son is still feeling a bit wobbly but he went back to school today which hopefully will keep his mind busy.

    I'm doing my best to keep the best positive attitude I can but it is still very overwhelming not knowing just what the not so distant future holds...every day is a step closer.

    X

  • Online in reply to Peanut246

    I am so glad you are still posting here and talking to us. Be positive was said to me.

    The not knowing is more than very stressful. Keep your chin up. We are here.

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