Undergoing investigation for suspected ovarian cancer

Hi,

I am new to the forum. I am 51 with a 12yo son, a lovely partner and also a beautiful labrador that won't leave my side as he knows Mum is poorly.

I have had blood tests/ ultrasound  for suspected ovarian cancer. I see a specialist next week for diagnosis. My symptoms are many but the worst is currently fluid retention in my abdomen. I'm booked in to have it drained in a few days, this cannot come soon enough. I have been referred for a CT scan too as the ultrasound wasn't clear due to the fluid build up. The scan did show a mass that needs addressing.

My head is spiralling and the unknown future is terrifying. I'm reaching out to see if anybody has any wise words for this limbo time I find myself in?

I feel like I have a huge ticking bomb inside me.

thanks

  • Hello Peanut246

    I'm sorry to hear about all that you've been going through recently. Hopefully, having the fluid drained will bring you some physical comfort whilst you wait for the CT scan and the next steps regarding a treatment plan. 

    It's understandable that you're feeling overwhelmed by things and that you're concerned about what will happen. I know that for many people this period of waiting for additional tests and results can be difficult and it's natural to have lots of questions, concerns and even fears. It can often help to talk with someone about those things and how you're feeling. It might be useful to chat things through with one of our nurses, who I know will be happy to listen and offer any advice, information and support they can. If you'd like to chat with them, they're available Monday to Friday 9am to 5pm on 0808 800 4040. You might also like to have a look at this thread about waiting for news, which has some tips and advice that might help you cope. 

    Keep in touch Peanut246 and let us know how you're getting on. We're here for you. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you for your response and advice. It feels like such a lonely and long time waiting to find out exactly what is going on. 

    The ascites are so uncomfortable, I cannot sit up now, my tummy looks like a full term pregnancy and its happened so quickly over the last week or so.

    I'm off to see my GP today so hope I get some support there. Since this started I have not seen my GP. I was originally examined by an out of hours iGP in a different practice, I have had phone calls with my GP and been seen at hospital. I have felt unseen by my GP... but a call to 111 when I reached breaking point in the early hours of today has meant they have finally given me a face- to- face appointment  I know the NHS is under pressure but why do I feel like an inconvenience to them?

    Thanks for being there.

  • Ah, Peanut246, I'm sorry to hear that it's been so difficult and that you've not had the support you need from your GP. It's good to know that you reached out for help and the out-of-hours service has been able to secure an appointment for you with the surgery today. 

    Is there someone who can go with you to the appointment for some moral support? You are not an inconvenience and you shouldn't be left feeling this way so I hope that after seeing your GP today you're given more support whilst you're navigating these investigations. 

    Let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Update time...I saw a GP at my practice who sent me straight to A&E and after many hours of assessment they admitted me with a plan to perform a laparoscopy and biopsy op tomorrow.

    Although I still feel physically dreadful at the moment at least I feel my symptoms are being fully monitored now.

    I really hope this is the start of some much needed relief physically and mentally.

    Thanks

  • At least now they have a plan of action for you! I feel like when you are out of your pain/discomfort you will be able to go in to this strong minded xx

  • Thank you Gemmmag. You are right...whatever is coming my way I know the action is being taken to fully address it now.

    My son threw up last at home so can't visit me in hospital over the weekend which is sad but we plan to chat on the phone later. I can't wait to hear his voice, bless him, he is my world x

  • Our kids are our entire world. I think the reason when dealing with such a worry isn't so much for us, but for them! You sound like an amazing mother and your baby will love to speak to you later. Make sure you give them a massive squeeze when you do see him x

    I honestly believe a positive mind set can get us through most things my darling.  My dad was diagnosed with ms when I was 1, im not 41 and he's still going, I will croak it before he does. Hes always been very positive and always relied on a good diet (apart from mounds of dark chocolate) and the help of his specialists. You got this girl.  Xx

  • Your kind words and positivity made me smile. When someone like you takes the time to reach out to a stranger in a time of crisis it's very touching and I appreciate your energy. I will channel your Dad's positivity too and fight with all I have xx

  • You got this girl. Anytime u want a chat, I'm here xx

  • Another update....so everything's changed again!

    Just saw the Gynae Specialist and he decided not to send me for the laparoscopy/ biopsy today. He wants to discuss my case with the multi disciplinary  team tomorrow and go from there.  I'm now awaiting a CT scan but may not get it done today if there is no space for me. He also wants an MRI done. Either way I should be free to go home later and return in morning for my outpatient appointment for paracentesis as originally planned.

    I can't wait to go home and hug my son and cuddle up with my lovely doggy later. 

    I feel a bit better since talking to the Dr, as he was very reassuring even though he expressed concerns at my case not being ' usual'. The mass they saw on ultrasound is 10-12cm diameter and he said that is not very big! I suppose this is a waiting game now to get to the bottom of what's going on. 

    Thanks for the support...I will be back! X