Hi all, new to the chat. I have had neuroendocrine cancer removed just under a year ago and recently getting returning symptoms, plus some.

First of all, I’m sorry you’re all on here in the first place. Let’s face it it’s not a position any of us ever want to be in. I hope your journey is going as smoothly and as pain free as possible. Sending you healing hugs. 
It’s a long story of mine, I have multiple health conditions and a lot has happened over the last 2 years;

My partners cousin and aunt had passed with late stage cancer, I miscarried and haemorrhaged, my cousin was diagnosed with glioblastoma 2 years ago and is now rapidly declining, my sister had a stillborn, I then got pregnant again, gave birth June 9th 2024 a week after I ended up in hospital with reoccurring chest and back pain and this turned out to be gallstones. Whilst I was having scans to find the root cause of pain at that time they also found my lung tumour, I was sent for a non emergency bronchoscopy and then in August 2024 I was told it was neuroendocrine tumour- a very confusing diagnosis. I had to have 4 mris on my liver to make sure the lesions on my liver were exactly just lesions and by the sound of it they’re still not sure what they are as they’re “stable” on scans. And finally my partners dad has just passed from tongue cancer. 


honestly it’s really hard to be ok right now. 
my partner has just gone to Ireland to spread his dads ashes and I’m terrified to tell him how I’m feeling, my symptoms are returning, I’ve had blood in my stool, and my other health conditions are getting worse. I have no idea what help to get, where to turn to. I know I need mental health help but I don’t know where to turn to as I’ve just got too many separate issues. I feel out of place on a cancer forum as I’m technically NED. My mind feels like it’s going to blow up. I feel like I’m going to break down and the stress is just awful to cope with right now. 

im sorry for babbling but I needed to get this out somewhere. Thank you ️‍

  • Hello Emmy94

    I'm sorry to hear about all that you've been through. It sounds like it's been a really difficult time and it's understandable that you're feeling overwhelmed by things. You've made the first step in reaching out for help and support by posting here. 

    Whilst it's great to hear that the liver lesions are stable, please do talk with your GP or specialist team about the symptoms that you've recently noticed, such as the blood in your stool. You know it's important to get these things checked and whilst it can feel overwhelming and worrying at times, I'm sure you understand that the earlier these things are investigated, the better the options are for the specialists to improve things. 

    When your partner returns from Ireland, do try and make time to sit with him and share your concerns. I'm sure he will want to support you. I'd also recommend talking with your GP about how you're feeling so that they can offer some support with your mental health. 

    In the meantime, you're also welcome to call our team of nurses to talk things through with them. I know they will be happy to offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

    You and your family have been through so much in the last few years Emmy94. Please reach out to the health professionals around you so that you can access the support you need. Keep posting here in the Cancer Chat community if it helps to have a safe space to put down in writing how you're feeling, ask questions or chat with others who understand. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator