New to the group - diagnosed with Myeloma in August due complete 2nd cycle of my treatment next week. It would good to speak to anyone with the same cancer especially with the STEM harvester procedure
I'm sorry to hear about your recent diagnosis of Myeloma. I hope that your first cycle of treatment went smoothly and that you're being well supported by those involved in your care.
We have several people who have posted about going through treatment for myeloma on the forum. You can use the search function at the top of the page to search for the term "myeloma" and read through some of those posts. You might also want to have a look at the Blood Cancer UK website.
Hopefully you will be able to connect with others who have been through the STEM harvester procedure. There is some information about this on the Myeloma UK as well as information about stem cell transplants on our website.
If it would help to chat things through with one of our nurses at any point, you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to talk and offer any advice, information and support they can.
I hope that the second cycle goes well next week. Let us know how you get on.
I had my stem cell transplant September 2024, I'm in remission now and looking back i was also worried.
However the treatments they have now are amazing. You might feel really tired after the treatment and wonder if it will ever end. Well it will and slowly but surely you will get better day by day. Everyone is different even though the treatments are the same. Don't rush your recovery rest when your body is telling you loads of rubbish to watch on Netflix and such.
I've changed my whole work life now, I don't want anymore stress in my life and I'm going back to sculping for a living. The bone marrow biopsy would be the most painful thing you'd have so you're doing well after that. It might be a long road However its up to you whether its a tunnel or an open road with blue skies. Plan a trip to look forward too, somewhere hot so you can relax in a years time.
Hi I have just been diagnosed with Myloma and on my first Chemo cycle. I have not had any sickness or nausea so far so hoping that is a good sign for the cycles to come (??) Did you have any problems with that. I have to say I am trying to have a positive outlook to all of this I am sure it must help in the long run. It's great to read you being so positive too I like the idea of the open road with blue skies!! The bone marrow biopsy wasn't too bad at the time but the few days maybe just after was a bit painful before settling down again. My hubby has Alzheimer's & Vascular dementia so don't think I will booking any trips away but I do love a bit of retail therapy so maybe that will do the trick and great to look forward to!!
Hi Suzie-W, I'm sorry to hear about your husband and your diagnosis.
Im happy to hear that your treatment is going well and you're not having any sickness either. I never had any sickness, but I didn't know what to expect treatment wise. My thoughts were worse than what it really was to be honest. I think the worst part for me were the long waiting times at the hospital for blood results. I did have a few side effects with swollen ankles for a week or two other than that things went smoothly. The nurses at my hospital were great and explained everything to me if I didn't understand anything, so I owe them a big thanks. They always told me to write down anything that was different week to week so I could relay it back to the consultant, which helped looking back at it all. Be positive as our minds are also part of the treatments, and retail therapy will be fabulous thing to do (its also classed as exercise).
Good luck with the rest of your treatment I'm sure things will be fine.
Thanks for your reply. Well retail therapy and exercise all in one package - GO ME!! I have been writing daily in a journal as a reminder for later on - it's so easy to forget some things when time has passed. I hope you continue to do well and wish you all the best.
So sorry to hear about your husband it must be extremely hard for you I hope you have a good support team around you.
Like you no real side effects from the weekly injections or daily medicines. Injections and drugs reduce as you progress with your treatment I did have a sore mouth for a week or so but if that's all I take that.
I am just about to complete cycle 4 of my ttreatment have just received the 26th January for my STEM harvesting so I will keep you posted in the new year to how that goes.
Once you are out the otherside treat yourself to a special shopping trip somewhere you have never been it will give you something to look forward to. My local city centre isn't that great I usually end up going to Southampton or London which means spending more money
Hope your treatment goes well let me know how you get on
