Annoyed - I recently found out that a nodule was not removed from my lung and is now being treated as cancer. I will only be on watch and wait

In May of this year I underwent an operation on my lower left lung, to remove a nodule. The surgeon said he could not remove a larger wedge as the lung was spongy.  He did not say he wasn't able to retrieve the nodule. Therefore I was under the impression the nodule had been taken. Even at the follow up clinic I was not informed the nodule had not been retrieved. Two months following the operation I was informed by telephone I was cancer free. The relief I felt was wonderful to say the least.

Then in September I saw the Doctor who made the referral to the surgeon. He told me a small piece of the nodule was still in my lung and I would have to have radiotherapy which I accepted. Then two weeks later I recieved a letter from the doctor saying that the  nodule had not removed!! To say I was angry and confused is an under statement. I immediately made an appointment to see the doctor again. I expressed my concerns and reiterated what he had told me. Which he put down to me not understanding what he had said. I along with my husband heard him clearly say ' a little piece '.  I was referred to an Oncologist who I feel gave me an honest explanation. The nodule is still there and because a biopsy has not  been taken off the nodule, they are treating it as a cancer. He also said there were other nodulesI in my lung which did not  did not treatment.  At a later date I was told  i had  MZL. Which the oncologist said they would not treat it. It will be a watch and wait. All told this has been on going for ten months.

  • Hi Batu, 

    I just came across your post and noticed you haven't had a reply so I thought I'd quickly stop by to welcome you to the forum and to reassure you that your post has been seen.

    I'm really sorry to hear about the confusion surrounding this nodule and that you've now been told you have Marginal Zone Lymphoma (MZL). This must be incredibly frustrating so it's completely understandable why you're feeling so annoyed. Although it won't make up for what has happened, I'm glad you've had an honest explanation from an oncologist and now know where you stand.

    Hopefully some of our members will offer their support and advice to you soon but if you would like to talk to one of our cancer nurses about any of this they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.

    Do keep posting if you find it useful Batu and remember that we'll be here to support you on every step of this journey.

    Kind regards,

    Steph, Cancer Chat Moderator