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CLL for me

MickBulb
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Mick here I'm 54 and I got diagnosed with CLL earlier this year.

I wasn't shocked when I found out as I had all the side effects for many years.

Most people in my life were more upset then I was and I reassured them it's not the worst cancer to get.

The main thing to tell yourself is that what you have is treatable where as many other types are not.

I chose the oral chemo drug called Brukinsa and I am 4 days into my treatment and so far so good, also taking Aciclovir and Co-Trimoxazole to help counter the side effects.

If anyone needs a chat just hit me up.

Parents
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    Hi. i found out the week that I have CLL. My GP doesn’t seem that worried but I am. Referred myself for further tests with a specialist on December 23rd. Then take it from there. My cell count has been elevated for over a year but my new GP said let’s have further tests. Since July I have had recurrent mouth ulcers that just do go away…

    what where your counts? Looking back via my NHS App they have been elevated for over a year.

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  • Offline

    Hi. i found out the week that I have CLL. My GP doesn’t seem that worried but I am. Referred myself for further tests with a specialist on December 23rd. Then take it from there. My cell count has been elevated for over a year but my new GP said let’s have further tests. Since July I have had recurrent mouth ulcers that just do go away…

    what where your counts? Looking back via my NHS App they have been elevated for over a year.

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