Hi there. When I read your post I thought I was reading about me! I have also been diagnosed after a routine screening and thought there must be some mistake. I am in total shock. I have had biopsies and tomorrow I am having a contract enhanced spectral mammogram. I also do not want to worry family and really don’t know what to think myself. Everyone says waiting is the hardest part. Good luck. You are certainly not alone.

Hi Wiganfc,

Thank you for replying. 

 I had something similar, I had an MRI with contrast it wasn't as bad as I thought it would be.

Yesterday I went for a ultra sound and they took a biopsy of something found on that,  My journey seems to get longer and longer as hoping for a surgery date originally for a lumpectomy now being told that could change because they have found further cancerous cells.

I understand that the doctors are unable to confirm anything until all the information is together but the waiting is so worrying.

I hope tomorrow goes well for you

Let us know

How do they discover that as thought they were scanning breast. I have a benign cyst on my thyroid, hopefully not related to my cancer. I really hope that your results are positive. Let me know how Tuesday goes x

Hi. Just wondering how today went for you

I have made the decision to go for a double mastectomy and have a flap restructure. I feel so much better for making the decision, I think going forward I would have worried about the cancer developing in my left breast.

Is it tomorrow you have the scan on your thyroid? 

Yes. Scan tomorrow.

Good luck let me know how you get on

Hi Cherry,

I am glad to hear that you have reached a decision and are going for the double mastectomy. Are you going for the restructure at the same time and do you know when you will have surgery?

Don't forget that we are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine. 

Yes I'm going for the restructure at the same time as that is how my surgeon does it. However, there will be a delay as he has to liaise with another hospital for plastic surgery, so could be 2 or 3 months. I'm pleased to have made decision.

Thank you

How did scan go? When do you get results? 

The scan went well. There is nothing sinister there. The thyroid has been bleeding internally so has built up “debris” but they are just leaving it. I get breast scan results next week so hopefully will then know my treatment plan. Thank you for asking and I hope you are ok. 

Evening Wiganfc, sorry I haven't been on for a while. I have had a meeting with the surgeon doing my mastectomy and also the surgeon doing my restructure. I have a few more appointments coming up to prepare me for surgery,  which I believe will be at the beginning of January.

Have you had your scan results? Do you have a treatment plan in place?

Cherry

Evening Wiganfc, sorry I haven't been on for a while. I have had a meeting with the surgeon doing my mastectomy and also the surgeon doing my restructure. I have a few more appointments coming up to prepare me for surgery,  which I believe will be at the beginning of January.

Have you had your scan results? Do you have a treatment plan in place?

Cherry

Hi Cherry. I am having a lumpectomy and node removal on the 25th November. I have appointments over the next 2 weeks to prepare me for the operation. It still feels very unreal to me so I don’t know when reality will hit. Will need radiotherapy after  but have no dates for this. My consultant warned me that I may need more surgery dependant on biopsy on the nodes etc. Sorry that you have to wait until January. Are you coping ok? Lovely to hear from you. Take care.

Pam

Hi Pam,

I am so pleased for you it sounds like they have everything under control. I totally understand what you mean about it feeling unreal. I have not really had time to think about what is actually going on, it all seems so sireal and like you not sure when this will hit me. 

The reason my op is not taking place until new year is because I am having a restructure the same time as the double mastectomy so 2 surgeons involved. They have to find a day when they are both avaliable. Also I have my sons wedding on the 19th November. The first date they gave me was the 16th December, but I wouldn't have anyone to look after me when discharged as my son would still be on honeymoon so have delayed until the new year.

I'm coping OK thanks how about you? I'm sure you just want this all over with.

Thinking of you

Cherry

Hi Cherry. A wedding to look forward to how lovely. Have you chosen your outfit. I think I may still be in denial which may not be a bad thing but maybe not good long term. Two appointments this week for pre op and magseed insertion. 
Not long to go before the wedding. Hope you have a wonderful day. 
Pam

Hi Pam, hope you are OK after your pre assessment. Just wanted to wish you the very best for your lumpectomy on Tuesday. When you feel up to it let me know how it went.

I will be thinking of you 

Cherry x

How kind of you to contact. I was going to ask you how the wedding went? 
I am starting to get nervous. My pre op was fine and I go radioactive tomorrow! I will let you know what happens on Tuesday Take care. 
Pam x

Hi Pam, the wedding was lovely, I had an amazing time and they looked so happy.

It's my birthday today and my daughter treated me to go and see The Lion King in London, it was such a surprise and the show was fantastic.

I understand how you feel about feeling nervous. All the time you can be practical about things going to tests and just carrying with your normal every day life it doesn't feel real.

You will be fine on Tuesday, take each day as it comes. I assume your family now know and are supporting you?

Take care and rest after your op, let me know how you get on.

Cherry x

You will never guess what happened today. I got booked in etc etc. First on the list. Seen by my surgeon but then the anaesthetist wasn’t happy about my enlarged thyroid. She spoke to her colleagues and it was decided that it wasn’t safe to continue until they had further information. I need to have a ct scan and endoscopy. I am so upset and frustrated so will need to await another surgery  date and hope the appointments come through soon. 
Have you had a date yet for your op? X

Oh Pam I'm so sorry. I thought they had already investigated your thyroid and decided it was OK?

That must be so horrible to build yourself up for the op only to have it cancelled like that. I'm sure you will be seen quickly as the cancer path deadlines that have to be met. Please don't worry I'm sure all will be fine and if it isn't then we can support each other. My op is on Tuesday 13th January.

Take care and keep me posted

Cherry x

Hi Cherry. I had my scan on throat,neck and chest so will be on the phone tomorrow to find out what they are planning. At least you will be able to enjoy Christmas and new year before your op. I very much appreciate your support. X

Hi Pam, sorry I haven't replied before now I have been in bed since Wednesday with an awful sickness bug.

Did you phone hospital and see what they have decided going forward?

Yes my op being in January is because my first date was 16th December and my son is on honeymoon and my daughter is being treated to a surprise trip away. Therefore, I wouldn't have anyone at home when I came out of hospital, the 13th January was the next available day. 

Hope you are OK and they have given you a date now for your op

Cherry x