Hi there. When I read your post I thought I was reading about me! I have also been diagnosed after a routine screening and thought there must be some mistake. I am in total shock. I have had biopsies and tomorrow I am having a contract enhanced spectral mammogram. I also do not want to worry family and really don’t know what to think myself. Everyone says waiting is the hardest part. Good luck. You are certainly not alone.

Hi Wiganfc,

Thank you for replying. 

 I had something similar, I had an MRI with contrast it wasn't as bad as I thought it would be.

Yesterday I went for a ultra sound and they took a biopsy of something found on that,  My journey seems to get longer and longer as hoping for a surgery date originally for a lumpectomy now being told that could change because they have found further cancerous cells.

I understand that the doctors are unable to confirm anything until all the information is together but the waiting is so worrying.

I hope tomorrow goes well for you

Let us know

Hi Wiganfc,

A very warm welcome to our forum.

I am sorry that you have been diagnosed with this too and I hope that your MRI tomorrow goes well. You might find it helpful to ask when you are likely to get the results when you attend. This is always an anxious time and it is helpful to have a rough guide as to when to expect your results.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Wiganfc, 

How did your mammogram go? When will you get results? Do you know what is next for you? They found cancer in my other breast, they called it a DCIS which apparently means cancer cells in situ. This means it isn't invasive like my other breast. 

I should get my results on the 17th when I see the doctor at the hospital, I'm in Kent. I'm then hoping for surgery  .

Keep me posted

Hi there. It was a weird sensation. Metallic taste. Hot flush and then feeling like I was sitting on a heated car seat. Will get results in 2 weeks. They x-rayed both breasts. I asked to look at the x-rays but they wouldn’t let me unless I had been trained to know what I was looking for! Please do keep me posted. You are ahead of me so you can be my role model!! I used to stay with my aunt and uncle in summer holidays. They lived in Nonington so I have fond memories of trips to Folkstone, Deal, Canterbury etc. Take care.

Hi 

Well done it's so horrible going for these scans and tests not knowing what happens. 

Keep in touch 

Hi Wiganfc,

I am glad that it all went well today You have another anxious 2 weeks, but, irrespective of the outcome, you'll feel better once you know.

Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Wiganfc

Have you had your results yet from your MRI yet?

I went back for my results last Friday 17th and for me it wasn't good news. I have 2 DCIS in left breast, in case you don't know this is a stage 0 cancer which means it is a cancer but is not yet invasive, and also an undetermined cell. The surgeon is talking about a mastectomy on my right breast. I have to make a decision on my left breast, the choice is to have the cells removed by vacuum and tested, if cancer then mastectomy on left or to just do both? Then if I should go for a restructure, silicone implant or stay flat and use prostheses within a bra. Such a hard decision.

I truly hope that you are OK and it's just a lumpectomy for you. 

Take care

Hi Jolamine, 

I went back and read your original post and see that you had a double mastectomy. I'm not sure if you can see my reply to Wiganfc but this is now an option for me. Could you please tell me how you felt at the time? Did you have a restructure, silone breasts or stay flat and use prostheses?

I am currently struggling to decide and wondered if you would mind sharing. 

Thank you

Hi there. I am still waiting for my results. So sorry to hear your news. I had a vacuum biopsy and this is what I am waiting to hear about. Will you go for the vacuum biopsy before making a decision?. After my vacuum I had an X-ray with dye. The vacuum wasn’t too bad so nothing to worry about. I hope get my results on the 27th. Waiting is so hard. Knowing you have cancer and wondering what the future holds. Take care. 

HI like you I'm on the beginning of my journey to from routine mammogram. I have lobular HER2 and Hr + iv told my family it was hard especially as my two sons live in Scotland and my mum is 83 and not well herself. I can explain to my family as things progress appointments etc.

Good luck to you all x

Hi

Good luck on your journey keep us posted. 

I have told my family now, I think I just needed time to process myself. Yes it is hard as you feel it is your job to protect them but my family have been brilliant.

Keep us posted

Hi

Good luck on your journey keep us posted. 

I have told my family now, I think I just needed time to process myself. Yes it is hard as you feel it is your job to protect them but my family have been brilliant.

Keep us posted