Stem cell, high dose chemo

Hello 

I am just going to start stem cell treatment after doing a series of treatments prior that were very intense. I have germ cell cancer and have been told that I need to have a tandem of HDCT and stem cell and I am reluctant as there is no statistics to say the second does any thing other than cause organ toxicity. Has any one had 2? Or no the impact of 1? 

just any information would be great cause am thinking of saying no to the second as it also comes with higher risk of mortality having 2. 

Michelle xx

  • Hello Michelle

    I'm sorry to hear about your diagnosis and that you're having some concerns about the next steps in the recommended treatment plan. It's understandable that you feel you don't want to undergo any treatment that's not necessary or may cause you further issues in the future. 

    Have you spoken with your team about the concerns that you have? If not, then I'd really encourage you to try and have an open dialogue with them about the reasons and evidence to support the pathway that they are recommending to you. It may be that they're able to offer you some information and reassurance that will help you make the right decision for you. 

    If it would help to talk things through with one of our nurses before you talk with the specialist, then you're welcome to call them. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

    Whatever path you choose, Michelle, I hope that things go smoothly for you. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator