Care treatment concerns

Hi everyone, well where do I start! ? I was diagnosed with prostrate cancer and opted to have my prostrate removed in 2018 but although expected to eliminate my cancer, unfortunately it had spread to my spine and have lived with metastatic prostrate cancer since then. With the aid of the Zoladex injections every 12 weeks, this has controlled my testosterone perfectly to date. Great hospital and caring team that are very professional and can’t fault them. However, last year, around September after a routine scan, a tumour was discovered on one of my lungs! No symptoms but there it was. I was speedily treated and the tumour was removed at a marvellous top hospital in London . Great treatment and very professional and can’t fault my treatment there. Unfortunately, that’s where it goes downhill! After being discharged and referred to my local hospital, associated with the hospital that operated. I was told I would have a CT scan every six months for two years to monitor the situation. Well, after my discharge, my first appointment with the doctor at the hospital was 8 months after my operation. I was told I would have scan now. In fact my CT scan was another 4 months after the doctors appointment! So now, all but a few weeks my first scan was 1 year.  I tried after my family showed concern to highlight this with the lung unit nurses. Never heard a thing so now my first scan in September was scheduled for a different hospital at 11:30. That morning I had a phone call from the CT department, 9:30 so two hours before my long awaited scan telling me I couldn’t have the scan as the scan was with trace and I needed blood test prior to the scan! I was devastated. After complaining to my doctor she told me no trace was necessary and she never asked for anything other than normal CT scan. So,, bottom line is, a total mismanagement scenario, lack of care ( none really for a year!) and god forbid all cancer patients have the same indifference. I have not mentioned the hospitals as I now have taken steps to try and remedy their total negligence. Well, long winded I’m afraid but thought I’d share!! Many thanks The difference between hospitals is so massive sometimes and I believe dictates progress in care and treatment!

  • Hi Hammermick and a warm welcome to Cancer Chat, 

    Thank you for coming here and sharing your story. You've certainly been through a lot living with metastatic prostate cancer and I am glad that the Zoladex injections have been helpful and have kept things under control and that you were looked after by such a caring team and hospital. How unfortunate that this new lung tumour was found last year after a routine scan despite you having no symptoms. It's good though that you were treated very quickly and the tumour was removed and the treatment you received at the hospital was outstanding. It sounds like things went a bit downhill afterwards with all that waiting for scans and to see the doctor which must have been incredibly frustrating for you. What happened afterwards with the miscommunication and confusion about your scan must have added to your frustration. I hope that you have now had the CT scan and that things will be moving a bit faster for you from now on. 

    You did well to take steps to try and remedy their negligence - it's important that they get your feedback on your experience so that this kind of things doesn't happen to others in the future. 

    Best wishes, 

    Lucie, Cancer Chat Moderator