B PLL rare blood cancer

Hi  Im new to this group. I've recently been diagnosed with a rare blood cancer B PLL. Im on month 2 of meds that I have at home. On any group I look at there is never anything about it or anyone who has it. I would appreciate someone to talk to sometimes about it.

  • Hi NanaG and welcome to the Cancer Chat community.

    I'm sorry to hear you've recently been diagnosed with the rare blood cancer B-cell prolymphocytic leukaemia (B PLL).

    I've had a quick look through our forum and unfortunately I couldn't find anyone within our community with this diagnosis either, but you may have more luck through specific blood cancer charities such as Blood Cancer UK.

    If it would help, you're very welcome to have a chat about your diagnosis with one of our cancer nurses. You can give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they will do all they can to support you and provide you with any further information that can help you connect with others that have the same diagnosis.

    This must be a very difficult time, but we are sending you all our support NanaG and wishing you all the best with your treatment.

    Kind regards,

    Steph, Cancer Chat Moderator