Hello Amjaro

I'm sorry to hear about all that your son has been through over the last few years. It sounds like it's been particularly difficult these last year, and it's understandable that you're feeling scared about what the future holds for him. 

I'm unsure from your post if your son is still in the hospital or if his chest infections have been treated and he's come back home to his family. Wherever he is at the moment, I hope that he is being well supported by the health professionals involved in his care. 

If you think it may help to talk things through with one of our nurses, you're welcome to call them Amjaro. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

Hopefully some of the community members who also understand your situation will post to share their experiences and advice for coping with you soon. Keep in touch Amjaro and let us know how you get on. We're here for you. 

Best wishes, 
Jenn
Cancer Chat moderator