Breast cancer spread to spine and ribs: Looking to connect with others living with incurable cancer

Hi everyone,

I’ve recently found out that my primary breast cancer has spread to some bones in my spine, ribs and shoulder. I had a mastectomy last year followed by chemo and radiotherapy and have been on hormone therapy and target therapy. Unfortunately recent scans showed small lesions in some bones and I’m now on a different target therapy (Ribociclib). I’m finding it really hard to digest this recent diagnosis, I’m a single parent and my biggest concern is my son and who would look after him. I’m usually a really positive person but I’m finding it so hard just now to enjoy anything and to distract my mind from the fear of dying and leaving my son behind.  
It would be nice to speak to anyone with a similar diagnosis or any other single parents or people facing incurable cancer. I don’t know how I’m supposed to carry on as normal knowing that it’s likely I won’t be around to see my son grow up. 

  • Hi NicoleJ85 I am very sorry to hear about your diagnosis.  It is very hard to take this information in at first, it does get easier as time goes along.  I unfortunately do not have children but I have secondary breast cancer with mets in pelvis, spine , ribs and skull.  I also am on ribociclib, exemastane and denosumab injections.  I was diagnosed in September last year.  I think you will be around to see your son grow up.  The doctors can control and keep the cancer stable for many years to come and there are always new drugs, trials and treatments coming out all the time.  Is your breast cancer nurse helpful for you and do you have a support network around you?  It is hard to do this on your own.  I am on another forum on Macmillan website.  It is called Living with Incurable Cancer - patients only.  It is so helpful for me as we are all in the same boat on there, so many different types of cancer but all incurable.  The people are so supportive and friendly.  We have chats about gardening, what are you watching on TV all kinds.  I also phoned Macmillan when I was first diagnosed and they organized some counselling for me.  It was good to speak to someone not personally involved and she signposted me to all kinds of help.  I just wanted you to know that you are not alone.  I am happy to chat anytime.  Big hugs.

    Lee x