Extra mammary vulval Paget’s disease.

Hi my name is Basa. I am very lucky my Pagets is pre cancerous. I had my operation in January and it hasn’t spread. Since my operation I was advised to use Vaseline.

 I experienced bad pain and itching. At a follow up appointment on the 17th July, I was prescribed Instillagel local anaesthetic and disinfectant in a disposable syringe. It’s transformed my life. I hope it can help others.

  • Hi Basa and welcome to the forum.

    I'm so pleased to hear your extramammary vulval paget's disease was caught early and that there has been no further spread since your operation. This must have been wonderful news to receive.

    Thank you for taking the time to share your experience and advice on how to deal with potential side effects after surgery as well. It's great to hear how well you've been doing, and I'm sure your insight will really help others who are in a similar position.

    Kind regards,

    Steph, Cancer Chat Moderator