Stomach pain 6 years after oral chemotherapy for bowel resection

Hi, im a 63 year old male who had a bowel resection in 2019. Following my surgery I was given a 3 months course of oral chemotherapy that ran into the beginning of the Covid pandemic. 

On the second dose, I wasn't weighed and given the same as my initial first treatment dose.

I started to develop a uncomfortable and quite severe pain in the right side, which i assume is in my stomach area together with a lot of coughing. 

On my pre appointment for my third dose, I brought this up with my oncologist, who sent me for a scan, and told me it was a pocket of wind. My subsequent dose was reduced in line with my weight loss.

6 years later and I still get this quite debilitating pain after eating.  I've discussed this with my GP, surgeon etc, had numerous tests and scans, and nothing is found other than scar tissue. 

Has anyone else experienced this with oral chemotherapy please? I suspect its something that's always going to be with me now, but I would be interested to hear from others who may have had a similar experience. 

Thank you 

  • Hello Pilling and welcome to the Cancer Chat community.

    I'm really sorry to hear about the stomach pain you're still experiencing 6 years after finishing your cancer treatment.

    This must be very frustrating, especially when nothing except scar tissue has appeared on the tests and scans you've had since then to try and find the cause.

    Hopefully some of our members will stop by soon to share their experiences and advice but if you'd like to have a chat with one of our cancer nurses about this, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hello Pilling,

    l think your suspicion that what you are feeling is the bonus reminder that your bowel has been tampered with previously, and something that will continue to enrich your everyday.The bowel works as one piece in unison, disrupt that by removing a link and rejoining and expect to have to live with something akin to a rebellious child.

    l am a fit 73 and approaching ten years down the road since having my resection, and are still experiencing a changing experience with my bowel function.the one thing we share in common is the disagreement whether l live with it or it lives with me.

    l had radio/chemo pre op and 18 weeks of oxipilatin post op and given what it done to other bits of my body function l am not in the least surprised that my bowel exhibits differing traits, just amazed that it survived the treatment to be able to function at all

    Eating food can be the trigger for momentum in the the bowel and l suspect you are right to look to scar tissue narrowing the passage as your stool moves through at a faster rate in response to supply replenishment.

    My little friend revolves around a cycle that will see a crash and clear out for no other reason than it is time before returning back to a steady plateau until the next time. Interestingly when this happens l can put on up to 6lbs in weight even though l am evacuating faster than the Titanic,with it dropping back to normal after the event,that weight gain does not build up before but in the midst of this event, thats how l know l have a flare up occuring

    Like yourself it is the reasonable price we pay for our continued annual membership to the club of life,

    David