A very warm welcome to the forum Jonnie, although I'm sorry to hear about the side effects you're experiencing from your treatment. 

This must be very difficult, especially if you're finding your symptoms are getting worse as your treatment is progressing. If you haven't done so already, do make sure you let your medical team know as they will do all they can to make these side effects easier to manage and hopefully lessen the amount of pain you're in at the moment.

Hopefully some of our members who have had immunotherapy for bladder cancer will be along soon to share their experiences and advice but if you'd like to discuss this further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.

We're sending you all our support Jonnie and wishing you well with the rest of your treatment.

Kind regards,

Steph, Cancer Chat Moderator