ACC: Adenoid cystic carcinoma

Hi I have just had conformation of Adenoid cystic carcinoma in my right sinus and right eye socket and upper jaw and hard pallet, it’s been graded at 4.2 and non operable! I start radio therapy the end of next week to shrink it as much as they can at 63 not the news.i was hopping for sadly. 

  • Hello Blue4477

    I'm sorry to hear that you've recently been diagnosed with adenoid cystic carcinoma and that you've been told it's not possible to operate. I can imagine that this was very difficult news to hear. I hope that you have the support of family and friends around you as you try to process this information ahead of starting treatment next week. 

    We have a few members here in the Cancer Chat community who have been through head and neck radiotherapy. You can read some of their stories on this thread. I know that many of them will have a different diagnosis but many of the side effects of head and neck radiotherapy are the same and so you may find some helpful tips and advice for coping in their shared experiences. You might also find it helpful to have a look at the website for Salivary Gland Cancer UK

    We know that for many people, hearing the news that they have cancer can be really difficult. If it would help to talk with one of our nurses you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that things goes smoothly for you when treatment starts Blue4477. Keep in touch when you're able and let us know how you're doing. 

    Sending you my best wishes, 
    Jenn
    Cancer Chat moderator