New to this.
So my 16 year old son has relapsed for the third time with an Ependymoma, brain cancer.
It’s operable but the treatments are running dry as he has already had two lots of radiation. Proton beam and cranial and spinal therapy.
Hes having stereotactic radiotherapy next to see if that helps but time is running out.
I’m Dad & I’m petrified of losing him.
i know of nobody who is going through what’s happening to us so I have nobody to actually speak to.
reaching out I guess.
