terrified - large lesion found during third colonoscopy, biopsies taken urgently. So difficult waiting for results

Had my 3rd colonoscopy on 3rd July  and 2 others prior in May 22 and    (March 23  was   performed by 2 colorectal surgeons)

After colonoscopy doc told me he found a large centrally depressed lesion whilst not remove during colonoscopy, biopsies were taken and sent urgently,  I have to say I think he knew  without the biopsy or scan what the lesion was, I   referred to colorectal nurses ( they called the following day and to be honest I felt worse after speaking to her)   I was also sent for an urgent CTTAP scan  a week ago- so claustrophobic. Waiting on the results is like waiting for a stalker to attack even although I know what they will say.

Whilst advised not to research the information in the report given after the colonoscopy - ii did what  a lot of people would do! I researched the combination of characteristics of lesion and  no matter how are I try I haven't found the word ' benign'  only the words ' high probability of submucousal invasion/advanced cancer

My head is spinning, I am a single parent with a teenage son and I cannot stop thinking of him being left alone. I have already written a letter for him and bought birthday cards/ xmas cards for the future for him. 

  • Hi this sounds familiar to me bleeding from bottom for 2 years told haemorrhoids finally insisted i.was looked at by gp who was instantly worried 5 weeks wait first colonoscopy followed quickly by ct  and mri today consultant and a surgeon had a look up there with a rigid camera cant spell proper word and took biopsies 2 weeks to wait its 60 mm and of cancerous appearance they have told me there treating it as cancer just waiting for confirmation then hopefully some sort of plan , I literally feel like the *** has dropped out of my world , not coping at all snd dont know how to get through next hour let alone fortnight, any tips would be appreciated 

  • Hi, I wish I could give you some tips. I am exactly the same  really struggling to get through the day. They tell you go about your normal day- make yourself busy! If only that worked.

    i had biopsies taken on 3 July and told 2- 3 weeks for urgent biopsy results and should hear soon  but I already know what they will be.

    My  lesion is 25mm but it is the central depression and pit type are bad and I knew when Dr and nurse asked my sister to come in and his manner and body language said it all and the chat with with colorectal nurse was far from a comfort.  According to studies it takes 10 plus years to get to 25mm and in the past 14 years I have had 5 colonoscopies - 3  since may 2022- so it has been missed which apparently also happens especially with larger  sessile lesions.

    Every time I look at my son it is like being tortured thinking what will happen him- he's technically an adult but  I have brought him up on my own. 

    I hope you can find a way to cope and i am so sorry I can't offer you any strategy

  • Have you a treatment plan yet , or even any idea what that could be , i know what you mean i was taken in that room twice with the nurse and told lthey where fairly sure it was cancer then all the paprers you take have diagnoses colorectal cancer , have to work and put a smile on my face and listen to other people’s petty problems (hairdresser) is hard 

  • So far I have had no communication from colorectal nurse since July 4th, had CTTAP on 15th and then it goes to a multi disciplinary team before I am told anything. The lesion is still there as the  colorectal surgeon who did colonoscopy said he was unable to remove it.  What is even more worrying is that when I asked the colorectal nurse the following day if this was cancer that the doctor saw and her reply was  ' He is as  very, very experienced surgeon who obviously was not happy with what he saw and it greatly concerned him, hence the need for urgency, it has to be documented to move things forward'.  So it is even more scary that a very very experienced colorectal surgeon couldn't remove it during the procedure. I am so scared. 

    There were a lot of biopsies taken from colon that day but the large one was marked with the characteristics of  

    Mid Transverse 25mm sessile lesion, iia+iic, pit type V    Even though they tell you not to google- how many scared individuals wouldn't?  So in the numerous places I researched there is nowhere this is ever  the word 'benign'.  Instead everything is invasive cancer due to the characteristics of it.

    I am  so scare but also angry that if as the research states -takes 10 years plus to reach this size how did 3-4 previous colonoscopies miss this. I know when you sign the consent form you also have to accept that they might miss things -but missing the same lesion in 3-4 of them ????  (2011, 2014, 2022, 2023) 

    I am on leave just now so I am not having to face anyone outside. 

    It must be hard for you doing the job you do. Sending hugs to you.