Has anyone been told they have an IPMN and not been diagnosed with pancreatic cancer?

Please is there anyone that has been told they have a IPMN and not ended up with pancreatic cancer? 
I have limited information, only that it’s 6.7mm and likely a IPMN and consultant now wants to see me!! 

My brain is spiralling and I can’t look at my children without crying that I may not live to see them

married etc. I nursed a good friend with pancreatic cancer and lose the battle, he was 47 :( , it’s awful, there is only one winner, I saw that with my own eyes. This is a massive trigger and I’m losing mind With worry

Any advice would be welcome 

Very grateful 

Clare 

  • Hello Clare and welcome to the Cancer Chat community.

    I'm sorry to hear you've been told you have an intraductal papillary mucinous neoplasm (IPMN) and you're worried you're going to be diagnosed with pancreatic cancer.

    Although some of these tumours can become cancerous, most of them are benign, as mentioned on the types of pancreatic tumours page our website. I know this won't take away the worry this situation is causing but I do hope it can offer you some encouragement and comfort at this very stressful time.

    Hopefully you will hear back from some of our members who have been in a similar situation soon but if it would help to talk things through with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and with their knowledge and insight they will do all they can to answer your questions and put your mind at ease whilst you wait.

    I'm not sure from your post when you will be seeing your consultant, but I hope everything goes ok and you receive good news when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Claire I’ve recently been diagnosed with multiple IPMNs and I am absolutely terrified. I’m on surveillance and also have a polyp in gall bladder and renal, liver, thyroid cysts and I am just under monitoring with not one biopsy. Im absolutely terrified. Same as you looking at my children and my baby granddaughters I just feel so heart broken. It appears to be hereditary in my family, my Nan and uncle died of this so it’s just got me in terrible states .my Ca19 has steadily climbed since diagnosis in December, it was 42 in June, 

    just wondering how are you doing as I’m trying to find people who are going through the same ? 
    I hope your ok x

  • Morning Jo, sorry to read you're going through such turmoil, I have no words to help, as I’m still a wreck. 
    I recently had my annual surveillance MRI scan and the IPMN has stayed the same. Obviously this is encouraging but it feels like im living with a ticking time bomb inside of me. I am not able to control my mind as suffer with major health anxiety anyway. Having lost my Dad, aunt uncle good friend at very young ages I’m on a continual spiral. I also worked in palliative care after losing them, to help me understand more about end of life. I can’t unsee the suffering that I saw due to cancer. 
    I am so sorry I’m not a lot of positive help for you and that’s what we need to be is positive. Manifest good things will ultimately be a better choice for us. The stress and anxiety increases cortisol which in turn can feed disease. 
    I go to the gym a lot, eat much healthier than before being told I had this and Ive drastically reduced sugar and alcohol, I’ve never smoked. All these do help me process things, because if I know I’m doing all I can, that’s the best I can do and the rest is up to the gods above. 
    I too have cysts on my liver one is quite big, had a polyp removed from colon in October, have cysts on kidneys very small currently, constantly up the breast clinic having lumps checked always cysts thankfully. I was referred for a genetic test due to all the cysts in me and family history of breast and ovarian cancers but it was rejected. I think this maybe a blessing for if I knew I had the gene id no doubt write myself off. That said if I did have it then they’d maybe do more surveillance on all the organs. Who knows…. 
    always here to listen and chat, thank you for reaching out xxxx positive energy being sent to you xxxx