I was diagnosed with cervical cancer in Feb 24 it was stage 3c1. It was inoperable as it had effected my lymph nodes I had chemo chemo radiotherapy and brachyatherapy which finished in June. Then had scans and tests on my throat chest and bowel as they had been highlighted by a pet scan theses came back as normal. In October I got the news that the tumour couldn't be measured and the lymph nodes were normal.
When I was first diagnosed I also found out that I had a 3cm cyst on my right ovary but was told it was nothing and of no concern and the treatment would most likely take care of it so I asked about it and was told it was still there but was of no concern and was completely unchanged. In November I started with pain in my left hip I went to the Dr's after an xray was told I had osteoporosis in both hips the pain continued to increase and after a month stopped in my left hip and started in my right hip at one point it was so bad I could barely walk with the pain this continued until January as did visits to Dr's and increase of lots of pain medication . I had a ct scan on 11 jan 25 for oncologist which was booked when I saw her in October. I was referred by Dr's to orthopaedic specialist in January who ordered an mri scan. I attended my oncology appointment on 7 Feb which had been sent out at end of October to find appointment didn't exist only on my files. I received an appointment for gynaecology for 25 Feb where I was told that the mri had been referred by orthopaedics to them. I had a 10 x5 cm mass in my right pelvic area and stress fractures throughout my pelvic area due to radiotherapy. I saw oncologist next day who was put out gynaecology had already told me, i asked her if the mass was anything to do with the cyst she said yes but it was nothing to do with her as she only dealt with cancer and we didn't know if this was. She also noticed the ct scan I had done in December (which she had ordered) It was the first time anyone had opened it to look at it .It showed everything it showed the mass st 8.5 cm and all the stress fractures in my hips and lower spine.
I saw the surgeon the following week, it had been decided to robotically operate and remove the mass and ovary, I was told that it would be more complicated as radiotherapy treatment makes your insides changed and sticky. Had surgery beginning of April when I woke up nothing had been done due to the mass was pressing on my bowel and sticking to it. The mass was now 11cm. I was then took in for second operation beginning of May to drain the mass and try to cut as much of it out as they could I also had a ct scan at couple of days before The morning of the surgery I was told ct scan showed mass to be over 14cm and affecting my bladder. Had surgery again couldn't do anything as too big but did finally a biopsy. Biopsy results came back on 22 may where i was told it was all cancer it was cervical completely inoperable and I was being referred to new oncologist for chemo. I saw the oncologist on 3 june who told me as I asked him to tell me everything that I was going to die from this and that I might not be here by the end of the year. The only thing I could be offered was chemo but it would be to buy me more time and as soon as treatment stopped it would grow straight away that is if it worked.
I have been struggling to process and to come to terms with everything.it is overwhelming I am under palliative care and seem to have appointments everywhere. I have decided to have chemotherapy to see if they can shrink it to help with the pain and symptoms and hopefully give me a couple more months and i am about to start bosphosonate treatment for my spine and pelvic area to strengthen my bones as the fractures have got worse especially in my spine and it's agony. It has been horrendous having to tell my five boys and family and friends. I have 2 grandchildren age 7 and keep thinking how much I will miss out on as they grow up. So I am struggling with trying to come to terms with everything and I am angry that things got missed and that maybe this might have had a different outcome but maybe it wouldn't had.