Hi, just wondering if anyone here have experience with taking Letrozole for more than 8 years ? Also, does nyone have information / studies on the regards please ?
I left a message on ask the Nurse on the situation I am in (as below), and hopeful for the community to provide some input as well, please if possible. There is no need for all questions to be answered. Any answered questions, sharings and thoughts will be very much appreciated. Thank you.
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Hi, I hope for kind sharing / advise on the situation I am in please. I have listed down alot of questions that comes to my mind (thinking from out of the box) and I sincerely apologise for the length of them. I would just like to ensure I am well prepared and informed before I speak with my medical team / breast nurse.
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I will be having a telephone discussion with my breast clinic in another week or so to discuss about my letrozole intake. In my meeting with a doctor last year (as there was a concern with some changes to my breast and weight, thank God I am well), I was told to continue taking letrozole as it is good for me. The information of me to continue taking letrozole wasn’t stated in the visit summary letter that was posted to myself and also my GP after the visit. My GP recently found a letter (probably dated last year, I can’t remember) that says I was supposed to stop taking letrozole. In my discussion with my GP, she referred me back to the breast clinic for further discussion.
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I have taken the following courses of medications (amongst some other treatments etc) :
- Appx 2 years of Tamoxifen.
- My ovaries were then removed.
- Approximately 9 years of Letrozole.
- The cancer I had was triple + breast cancer.
- Some treatments I have had : Chemotheraphy, Radiotheraphy, Zalodex, Tamoxifen (after that, Letrozole). I have also removed my ovaries.
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I am trying to find information if there are researches for taking Letrozole for more than 10 years. Any guidance on this would be very much appreciated.
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After much consideration, I would like to continue taking letrozole. I read in another forum that this is something considerable. Please advice thoughts on this please, thank you.
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What other options do I have should my medical team disagrees to my intent of continuing with my preference in taking letrozole ? Do I have a choice to make decisions on this ?
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Are there any natural supplements that mimics letrozole ? Or supplements that help lessen the production of estrogen in one’s body ?
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What is the protocol / steps and what to expect when letrozole is taken off one’s medical list ?
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If you are in my situation, what would you do should your medical team decides to take Letrozole off you and you would like to continue taking it ? What other options that can be done on this regard ?
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If you are in my situation, what supplement would you take to protect / look after yourself should your medical team decides to take Letrozole off you and you have no choice but to submit to the decision ?
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Any information at all, or sharing of experiences be it relevant to the above or not are very much appreciated.
My very sincere apologise for the so many questions. I am feeling concerned, stressed and worried. For me, Letrozole is a safety net to me. I personally think the decision would be a life changing one and I would like to ensure I make the right decision moving forward.
Looking forward to kind reply. Thank you.
