Impossible decisions

Hi there. Given a diagnosis of stage 4 tongue cancer a couple of days ago. Two routes of action. Either total glossectomy followed by radiotherapy and maybe chemo. Or palliative radiotherapy. I had Acute promyelocytic leukemia (APML) in 2016, followed by therapy induced Myelodysplastic syndrome which quickly became AML. That led to an Allo Stem Cell Transplant Christmas 2019. I have been plagued with complications since including relying on a wheelchair most days. BUT the transplant has given me over 5yrs I didn't think I would see. Time with my sons, visits to new places, new experiences.

This new proposed surgery will be life changing with no guarantees and starting from a more fragile place. I have no idea how to decide. Do I choose potential longer prognosis, or shorter time but with maybe a better quality of life???? My medical team have another meeting next week and they may say inoperable. But I have a pre op assessment tomorrow incase. If I have the final choice I am so conflicted. And swing wildly in one direction or the other within minutes. How did anyone find a place where you were at peace with your decision whichever way you went? How do you deal with regret of not going the other way? 

  • Welcome to Cancer Chat Catcow,

    Making a big decision like this can be very difficult and, when you're at a crossroads, it's natural to worry about regretting a choice made, but all you can do is to use the information and advice you have at the time to make the best decision for you. I hope the pre-op assessment went ok and I'd suggest you wait until the medical team have their meeting so you have all the information available. They are the best people to discuss any concerns you may have. It might help to talk to people close to you for advice as well and, in the meantime, if you'd like to talk through anything with our team of cancer nurses you can call the free helpline on 0808 800 4040. Lines are open 9 to 5 Monday to Friday.

    All the best to you,

    Moderator Anastasia