Hi Im Lorraine
I was diagnosed with SCC of the tongue Stage 1 which had spread to the lymph's in my neck back in September 24. Since then I have undergone radical Surgery (Glossectomy, free flap to reconstruct my tongue & neck dissection to remove lymph nodes, followed by 6 weeks of gruelling radiotherapy. Consequently I am now 5 months post radiotherapy & suffering some intolerable side effects mainly an inability to swallow solid food as the muscle on the left side of my tongue is not functioning efficiently, so have had a feeding tube for nearly 6 months now, also sore mouth, secretions, loss of taste, dry mouth, & of course my speech is not what it was.
Just need some reassurance that things will improve really, wondered if there is anyone out there who has been on the same journey and has any advice, tips. Feeling a bit down at the moment as it feels like nothing is progressing, it is slowly but need to have an idea of healing time from someone who's been on the same journey.
Be grateful to hear from you.