Cancer Research UK main site
  • Replies 2 replies
  • Views 733 views
  • Users 0 members are here

MUM HAS LEPTOMENINGEAL DISEASE

LittleDC93
Offline

Hi, I'm new here and just struggling to come to terms with everything  my mum was diagnosed with metastatic breast cancer last year, we were told a few weeks ago it's now in her brain, and is leptomeningeal disease. She started chemo, but was taken off it yesterday an now the only option is whole brain radiotherapy. I'm so worried/scared to see her go through that and not sure what to expect, I know the prognosis isn't good .  She's already becoming forgetful, paranoid and her personality is changing. It's so hard seeing this change her

Parents

  • A very warm welcome to Cancer Chat LittleDC93 although I'm very sorry to hear your mum is now contending with leptomeningeal disease.

    This must be incredibly difficult you for both, especially with you already noticing the change with her personality and behaviour, but hopefully the radiotherapy that is being proposed will help alleviate some of her symptoms.

    If it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. With their knowledge and insight they will do all they can to answer your questions and address any other fears or concerns you have about this treatment or what may lie ahead on your mum's journey.

    Hopefully some of our members who have supported friends and/or loved ones in a similar position will stop by soon to share their experiences and advice but in the meantime, we're thinking of you LittleDC93 and sending you all our support at this very challenging time.

    Do let us know how things go when you feel up to it and remember that you are not alone.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply

  • A very warm welcome to Cancer Chat LittleDC93 although I'm very sorry to hear your mum is now contending with leptomeningeal disease.

    This must be incredibly difficult you for both, especially with you already noticing the change with her personality and behaviour, but hopefully the radiotherapy that is being proposed will help alleviate some of her symptoms.

    If it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. With their knowledge and insight they will do all they can to answer your questions and address any other fears or concerns you have about this treatment or what may lie ahead on your mum's journey.

    Hopefully some of our members who have supported friends and/or loved ones in a similar position will stop by soon to share their experiences and advice but in the meantime, we're thinking of you LittleDC93 and sending you all our support at this very challenging time.

    Do let us know how things go when you feel up to it and remember that you are not alone.

    Kind regards,

    Steph, Cancer Chat Moderator

Children
No Data

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.